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Self-Rated Communication-Related Quality of Life of Individuals With Oromandibular Dystonia Receiving Botulinum Toxin Injections
- Source :
- American Journal of Speech-Language Pathology. 26:674-681
- Publication Year :
- 2017
- Publisher :
- American Speech Language Hearing Association, 2017.
-
Abstract
- Purpose In this preliminary study, we examined self-rated communication-related quality of life (CR-QoL) of 10 control participants and 10 individuals with oromandibular dystonia (OMD) and dysarthria receiving therapeutic botulinum toxin (BoNT-A) injections. Method Participants with OMD and associated dysarthria self-rated CR-QoL pre- and post- BoNT-A injection using the American Speech-Language-Hearing Association's Quality of Communication Life Scale (ASHA QCL; Paul et al., 2004). Control participants self-rated CR-QoL during a single experimental visit. Results Significant differences were found between control participants and participants with OMD on ratings of CR-QoL across all 5 domains and subdomains of the ASHA QCL. No significant differences in CR-QoL were found over the course of the BoNT-A treatment cycle. Conclusions CR-QoL was rated lower by participants with OMD as compared with control participants across all ASHA QCL domains/subdomains with “socialization/activities” and “confidence/self-concept” having the largest effect sizes. No differences in CR-QoL were found over the course of the treatment cycle. We advocate for outcome measures that include patient report. The use of patient-reported outcome measures in conjunction with objective or impairment-based outcome measures can help inform meaningful clinical indicators of treatment success. This study adds novel information that may aid our understanding of the experience of living with OMD in this underserviced clinical population.
- Subjects :
- Adult
Male
Linguistics and Language
medicine.medical_specialty
Treatment outcome
Acetylcholine Release Inhibitors
MEDLINE
Injections, Intramuscular
030507 speech-language pathology & audiology
03 medical and health sciences
Speech and Hearing
0302 clinical medicine
Quality of life
Developmental and Educational Psychology
Humans
Speech
Medicine
Mandibular Diseases
Botulinum Toxins, Type A
Self report
Aged
Aged, 80 and over
business.industry
Dysarthria
Speech Intelligibility
Middle Aged
Oromandibular dystonia
medicine.disease
Botulinum toxin
Dystonia
Treatment Outcome
Otorhinolaryngology
Case-Control Studies
Anesthesia
Masticatory Muscles
Quality of Life
Physical therapy
Female
Self Report
0305 other medical science
business
030217 neurology & neurosurgery
Preliminary Data
medicine.drug
Subjects
Details
- ISSN :
- 15589110 and 10580360
- Volume :
- 26
- Database :
- OpenAIRE
- Journal :
- American Journal of Speech-Language Pathology
- Accession number :
- edsair.doi.dedup.....c21d9fed7e0bbd29a37a3a5a15c27310