Back to Search
Start Over
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal
- Source :
- Repositório Científico de Acesso Aberto de Portugal, Repositório Científico de Acesso Aberto de Portugal (RCAAP), instacron:RCAAP
- Publication Year :
- 2021
- Publisher :
- Wiley, 2021.
-
Abstract
- Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during 10 months and in-depth interviews were carried out with 10 patients with a life-threatening illness, 20 family members and 20 palliative care professionals. Food is not only a matter of nutrition in a biological sense, but also an act of giving care to patients with a life-threatening illness. The findings suggest that food and eating practices affect the processes of relationality and of doing family at the end-of-life in Portugal. Attention is particularly paid to gender differences. The study supports recent sociological research which understands the dying process as a relational experience and intends to develop sociological knowledge on the materialities of care.
- Subjects :
- Palliative care
family
Sociology and Political Science
end-of-life
Participant observation
eating practices
Affect (psychology)
ethnography
patients
03 medical and health sciences
0302 clinical medicine
Nursing
Ethnography
Humans
030212 general & internal medicine
Anthropology, Cultural
Portugal
030503 health policy & services
Health Policy
food
Palliative Care
Public Health, Environmental and Occupational Health
Sociological research
language.human_language
Death
language
Portuguese
0305 other medical science
Psychology
Social Sciences (miscellaneous)
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- Repositório Científico de Acesso Aberto de Portugal, Repositório Científico de Acesso Aberto de Portugal (RCAAP), instacron:RCAAP
- Accession number :
- edsair.doi.dedup.....bd8349fa2c7c43dfe1ed3f13daf120f8