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J Pediatr Gastroenterol Nutr
- Source :
- Journal of Pediatric Gastroenterology and Nutrition, Journal of Pediatric Gastroenterology and Nutrition, Lippincott, Williams & Wilkins, In press, 70 (2), pp.238-242. ⟨10.1097/MPG.0000000000002564⟩
- Publication Year :
- 2020
- Publisher :
- Ovid Technologies (Wolters Kluwer Health), 2020.
-
Abstract
- Objective This multicentric study aimed to evaluate the quality of life (QOL) in children with Hirschsprung's disease (HD). Methods HD patients aged from 6 to 18 years and followed-up in 2 French pediatric surgery centers were included in this study. QOL was assessed using the HAQL questionnaires according to age (6-11 and 12-18), filled by patients and their parents (proxy reports) and correlated with initial disease characteristics, nutritional status, and functional score of Krickenbeck. Results Sixty-three patients were included. The acquisition of satisfactory voluntary bowel movements was found in only 50% of the 6 to 11 years old and 68% of the teenagers. Seventy percentage of the children and 55% of teenagers had soiling issues. The overall HAQLproxy6--11 score was 528/700; best scores were found for "fecal continence" (94/100), "social functioning" (94/100), and "urinary continence" (92/100) whereas the worst scores were for "general well-being" (64/100) and "diurnal fecal continence" (58/100). The overall HAQLproxy12--16 score was 607/700; best scores were for "urinary continence" (96/100) and "social functioning" (93/100). In a multivariate analysis, soiling was the only factor significantly associated with low QOL (P = 0.03). Conclusions Soiling remains frequent in children operated on for HD and negatively affects their QOL. Assessment and treatment of soiling should be the priority for medical teams in the follow-up of these children.
- Subjects :
- medicine.medical_specialty
Pediatrics
Multivariate analysis
Adolescent
Disease
LEHA
03 medical and health sciences
0302 clinical medicine
Quality of life
Surveys and Questionnaires
030225 pediatrics
Pediatric surgery
medicine
Humans
Hirschsprung Disease
Child
Defecation
Hirschsprung's disease
2. Zero hunger
Urinary continence
business.industry
Gastroenterology
Nutritional status
medicine.disease
3. Good health
Pediatrics, Perinatology and Child Health
Quality of Life
[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie
030211 gastroenterology & hepatology
business
Fecal Incontinence
Follow-Up Studies
Subjects
Details
- ISSN :
- 15364801 and 02772116
- Volume :
- 70
- Database :
- OpenAIRE
- Journal :
- Journal of Pediatric Gastroenterology & Nutrition
- Accession number :
- edsair.doi.dedup.....bbe4500e6180fadef90ad8950785f6df