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The MSBase pregnancy, neonatal outcomes, and women’s health registry
- Source :
- Therapeutic Advances in Neurological Disorders, Vol 14 (2021), Therapeutic Advances in Neurological Disorders
- Publication Year :
- 2021
- Publisher :
- SAGE Publishing, 2021.
-
Abstract
- Background: family planning and pregnancy decisions are key considerations in the management of women with multiple sclerosis (MS), who are typically diagnosed between the ages of 20–40 years. Despite a strong evidence base that pregnancy is not harmful for women with MS, many knowledge gaps remain. These include: best management strategies through pregnancy in the era of highly effective disease-modifying therapies (DMT); foetal risks associated with DMT exposure in utero or in relation to breastfeeding; knowledge base around the use of assisted reproductive technologies; the long-term impact of pregnancy on disease outcomes, as well as the impact of long-term DMT use on women’s health and cancer risk. Methods: here, we describe the new MSBase pregnancy, neonatal outcomes and women’s health registry. We provide the rationale for, and detailed description of, the variables collected within the registry, together with data acquisition details. Conclusion: the present paper will act as a reference document for future studies.<br />National Health and Medical Research Council of Australia; MSBase Foundation; Roche; Merck; Biogen; Novartis; Bayer-Schering; Sanofi Genzyme; Teva
- Subjects :
- Registry
medicine.medical_specialty
Multiple Sclerosis
Women’s Health
MSBase
lcsh:RC346-429
Study Protocol
03 medical and health sciences
0302 clinical medicine
Pregnancy
medicine
Neurosciences
Neurology
lcsh:Neurology. Diseases of the nervous system
Pharmacology
030219 obstetrics & reproductive medicine
business.industry
Multiple sclerosis
Neonatal outcomes
Women’s health
medicine.disease
Clinical neurology
Family planning
Family medicine
Neonatal Outcomes
Neurology (clinical)
business
030217 neurology & neurosurgery
Subjects
Details
- Language :
- English
- ISSN :
- 17562864
- Volume :
- 14
- Database :
- OpenAIRE
- Journal :
- Therapeutic Advances in Neurological Disorders
- Accession number :
- edsair.doi.dedup.....b037b805e5f780c828cf38485c10b3bc