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Travel burden and clinical presentation of retinoblastoma: analysis of 1024 patients from 43 African countries and 518 patients from 40 European countries
- Source :
- BRITISH JOURNAL OF OPHTHALMOLOGY, r-FSJD: Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu, Fundació Sant Joan de Déu, r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu, instname, Fabian, I D, Stacey, A W, Foster, A, Kivelä, T T, Munier, F L, Keren-Froim, N, Gomel, N, Cassoux, N, Sagoo, M S, Reddy, M A, Harby, L A, Zondervan, M, Bascaran, C, Abdallah, E, Abdullahi, S U, Boubacar, S A, Ademola-Popoola, D S, Adio, A, Aghaji, A E, Portabella, S A, Alfa Bio, A I, Ali, A M, Alia, D B, All-Eriksson, C, Almeida, A A, Alsawidi, K M, Antonino, R, Astbury, N J, Atsiaya, R, Balaguer, J, Balwierz, W, Barranco, H, Popovic, M B, Benmiloud, S, Guebessi, N B, Berete, R C, Biddulph, S J, Biewald, E M, Blum, S, Bobrova, N, Boehme, M, Bornfeld, N, Bouda, G C, Bouguila, H, Boumedane, A, Brichard, B G, L, M C, Castela, G, Català-Mora, J, Chantada, G L, Chernodrinska, V S, Chiwanga, F S, Cieslik, K, Comsa, C, Correa Llano, M G, Csóka, M, Da Gama, I V, Davidson, A, Potter, P D, Desjardins, L, Dragomir, M D, Bruyn, M D, Kettani, A E, Elbahi, A M, Elgalaly, D, Elhaddad, A M, Ali Elhassan, M M, Elzembely, M M, Essuman, V A, Evina, T G A, Fasina, O, Fernández-Teijeiro, A, Gandiwa, M, Aldana, D G, Geel, J A, Gizachew, Z, Gregersen, P A, Guedenon, K M, Hadjistilianou, T, Hassan, S, Hederova, S, Hessissen, L, Hordofa, D F, Hummlen, M, Husakova, K, Ida, R, Ilic, V R, Jenkinson, H, Amani Kabesha, T B, Kabore, R L, Kalinaki, A, Kapelushnik, N, Kardava, T, Kemilev, P K, Kepak, T, Khotenashvili, Z, Klett, A, Kosh Komba Palet, J E, Krivaitiene, D, Kruger, M, Kyara, A, Lachmann, E S, Latinović, S, Lecuona, K, Lukamba, R M, Lumbroso, L, Lysytsia, L, Maka, E, Makan, M, Manda, C, Begue, N M, Matende, I O, Matua, M, Mayet, I, Mbumba, F B, Mengesha, A A, Midena, E, Mndeme, F G, Mohamedani, A A, Moll, A C, Moreira, C, Msina, M S, Msukwa, G, Muma, K I, Murgoi, G, Musa, K O, Mustak, H, Muyen, O M, Naidu, G, Naumenko, L, Ndoye Roth, P A, Neroev, V, Nikitovic, M, Nkanga, E D, Nkumbe, H, Nyaywa, M, Obono-Obiang, G, Oguego, N C, Olechowski, A, Oscar, A H, Osei-Bonsu, P, Painter, S L, Paintsil, V, Paiva, L, Papyan, R, Parrozzani, R, Parulekar, M, Pawinska-Wasikowska, K, Perić, S, Philbert, R, Pochop, P, Polyakov, V G, Pompe, M T, Pons, J J, Raobela, L, Renner, L A, Reynders, D, Ribadu, D, Riheia, M M, Ritter-Sovinz, P, Saakyan, S, Said, A M, Román Pacheco, S S, Scanlan, T A, Schoeman, J, Seregard, S, Sherief, S T, Cheikh, S S, Silva, S, Sorochynska, T, Ssali, G, Stathopoulos, C, Kranjc, B S, Stones, D K, Svojgr, K, Sylla, F, Tamamyan, G, Tandili, A, Tateshi, B, Theophile, T, Traoré, F, Tyau-Tyau, H, Umar, A B, Urbak, S F, Ushakova, T L, Valeina, S, Hoefen Wijsard, M V, Veleva-Krasteva, N V, Viksnins, M, Wackernagel, W, Waddell, K, Wade, P D, Wali Nigeria, A H, Wime, A D, Dod, C W, Yanga, J M, Yarovaya, V A, Yarovoy, A A, Zein, E, Sharabi, S, Zhilyaeva, K, Ziko, O A & Bowman, R 2021, ' Travel burden and clinical presentation of retinoblastoma : analysis of 1024 patients from 43 African countries and 518 patients from 40 European countries ', British Journal of Ophthalmology, vol. 105, no. 10, 316613 . https://doi.org/10.1136/bjophthalmol-2020-316613, r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
- Publication Year :
- 2020
-
Abstract
- BackgroundThe travel distance from home to a treatment centre, which may impact the stage at diagnosis, has not been investigated for retinoblastoma, the most common childhood eye cancer. We aimed to investigate the travel burden and its impact on clinical presentation in a large sample of patients with retinoblastoma from Africa and Europe.MethodsA cross-sectional analysis including 518 treatment-naïve patients with retinoblastoma residing in 40 European countries and 1024 treatment-naïve patients with retinoblastoma residing in 43 African countries.ResultsCapture rate was 42.2% of expected patients from Africa and 108.8% from Europe. African patients were older (95% CI −12.4 to −5.4, pConclusionsFewer than half the expected number of patients with retinoblastoma presented to African referral centres in 2017, suggesting poor awareness or other barriers to access. Despite the relatively shorter distance travelled by African patients, they presented with later-stage disease. Health education about retinoblastoma is needed for carers and health workers in Africa in order to increase capture rate and promote early referral.
- Subjects :
- medicine.medical_specialty
Referral
Epidemiology
Retinal Neoplasms
Medizin
Disease
03 medical and health sciences
Cellular and Molecular Neuroscience
0302 clinical medicine
Risk Factors
Neoplasia
Medicine
Humans
business.industry
Retinoblastoma
Extraocular Retinoblastoma
medicine.disease
eye diseases
Sensory Systems
3. Good health
Ophthalmology
Cross-Sectional Studies
030220 oncology & carcinogenesis
Africa
030221 ophthalmology & optometry
Health education
Residence
Presentation (obstetrics)
Epidemiology, Neoplasia
business
human activities
Demography
Subjects
Details
- ISSN :
- 14682079 and 00071161
- Volume :
- 105
- Issue :
- 10
- Database :
- OpenAIRE
- Journal :
- The British journal of ophthalmology
- Accession number :
- edsair.doi.dedup.....affbd6d53da4905bcad02dac378ec606