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Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies

Authors :
Don Murray
Kate McDonald
Peter Santer
Andy Dow
Leslie Brown
Peter Wright
John Vines
Harry Robinson
Roisin McNaney
Janice Murray
David Green
Heather Robinson
Source :
McNaney, R, Vines, J, Dow, A, Robinson, H, Robinson, H, McDonald, K, Brown, L, Santer, P, Murray, D, Murray, J, Green, D & Wright, P 2018, Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies . in Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems ., 491, CHI '18, New York, NY, USA, pp. 1–14, 2018 CHI Conference on Human Factors in Computing Systems, Montreal, Canada, 21/04/18 . https://doi.org/10.1145/3173574.3174065, University of Bristol-PURE, CHI
Publication Year :
2018

Abstract

While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in 'Parkinson's Radio' -- a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for conducting co-inquiry in HCI research.

Details

Language :
English
Database :
OpenAIRE
Journal :
McNaney, R, Vines, J, Dow, A, Robinson, H, Robinson, H, McDonald, K, Brown, L, Santer, P, Murray, D, Murray, J, Green, D & Wright, P 2018, Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies . in Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems ., 491, CHI '18, New York, NY, USA, pp. 1–14, 2018 CHI Conference on Human Factors in Computing Systems, Montreal, Canada, 21/04/18 . https://doi.org/10.1145/3173574.3174065, University of Bristol-PURE, CHI
Accession number :
edsair.doi.dedup.....a84a986c77bd3c7df8af674bf30c193c