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Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies
- Source :
- McNaney, R, Vines, J, Dow, A, Robinson, H, Robinson, H, McDonald, K, Brown, L, Santer, P, Murray, D, Murray, J, Green, D & Wright, P 2018, Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies . in Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems ., 491, CHI '18, New York, NY, USA, pp. 1–14, 2018 CHI Conference on Human Factors in Computing Systems, Montreal, Canada, 21/04/18 . https://doi.org/10.1145/3173574.3174065, University of Bristol-PURE, CHI
- Publication Year :
- 2018
-
Abstract
- While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in 'Parkinson's Radio' -- a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for conducting co-inquiry in HCI research.
- Subjects :
- Multiple stages
Service (systems architecture)
business.industry
medicine.medical_treatment
05 social sciences
Control (management)
Collectivism
Health technology
020207 software engineering
health
02 engineering and technology
Public relations
Support group
0202 electrical engineering, electronic engineering, information engineering
medicine
participation
0501 psychology and cognitive sciences
Health information
co-inquiry
business
Psychology
parkinson's
050107 human factors
Information provision
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- McNaney, R, Vines, J, Dow, A, Robinson, H, Robinson, H, McDonald, K, Brown, L, Santer, P, Murray, D, Murray, J, Green, D & Wright, P 2018, Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies . in Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems ., 491, CHI '18, New York, NY, USA, pp. 1–14, 2018 CHI Conference on Human Factors in Computing Systems, Montreal, Canada, 21/04/18 . https://doi.org/10.1145/3173574.3174065, University of Bristol-PURE, CHI
- Accession number :
- edsair.doi.dedup.....a84a986c77bd3c7df8af674bf30c193c