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African American kidney transplant patients' perspectives on challenges in the living donation process
- Source :
- Progress in transplantation (Aliso Viejo, Calif.). 25(2)
- Publication Year :
- 2015
-
Abstract
- Context— The increasing shortage of deceased donor kidneys suitable for African Americans highlights the critical need to increase living donations among African Americans. Little research has addressed African American transplant recipients' perspectives on challenges and barriers related to the living donation process. Objective— To understand the perspectives of African American recipients of deceased and living donor kidney transplants on challenges, barriers, and educational needs related to pursuing such transplants. Participants and Design— A mixed-method design involved 27 African American kidney recipients (13 male) in 4 focus groups (2 per recipient type: 16 African American deceased donor and 11 living donor recipients) and questionnaires. Focus group transcripts were evaluated with NVivo 10.0 (QSR, International) by using inductive and deductive qualitative methods along with crystallization to develop themes of underlying barriers to the living donor kidney transplant process and were compared with the questionnaires. Results— Four main themes were identified from groups: concerns, knowledge and learning, expectations of support, and communication. Many concerns for the donor were identified (eg, process too difficult, financial burden, effect on relationships). A general lack of knowledge about the donor process and lack of behavioral skills on how to approach others was noted. The latter was especially evident among deceased donor recipients. Findings from the questionnaires on myths and perceptions supported the lack of knowledge in a variety of domains, including donors' surgical outcomes risks, costs of surgery, and impact on future health. Participants thought that an educational program led by an African American recipient of a living donor kidney transplant, including practice in approaching others, would increase the likelihood of transplant-eligible patients pursuing living donor kidney transplant.
- Subjects :
- Adult
Male
medicine.medical_specialty
Health Knowledge, Attitudes, Practice
Tissue and Organ Procurement
Economic shortage
Kidney transplant
Living donor
Article
Patient Education as Topic
Surveys and Questionnaires
medicine
Living Donors
Humans
Kidney transplantation
African american
Transplantation
business.industry
Focus Groups
Middle Aged
medicine.disease
Focus group
Kidney Transplantation
United States
Black or African American
Family medicine
Donation
Immunology
Kidney Failure, Chronic
Female
business
Attitude to Health
Qualitative research
Subjects
Details
- ISSN :
- 15269248
- Volume :
- 25
- Issue :
- 2
- Database :
- OpenAIRE
- Journal :
- Progress in transplantation (Aliso Viejo, Calif.)
- Accession number :
- edsair.doi.dedup.....a5476b781d323635b199f98e7d80b0c5