Back to Search
Start Over
'Timing it Right': needs of African American adults with stroke and their caregivers across the care continuum
- Source :
- Ethnicityhealth. 27(2)
- Publication Year :
- 2019
-
Abstract
- Objective: African Americans are disproportionately affected by stroke in the United States (US). The purpose of this study is to explore experiences, wants, and needs of African Americans with stroke and their family caregivers residing in the stroke belt across the care continuum using the 'Timing It Right' (TIR) framework as a conceptual guide.Design: We conducted a series of focus groups among 20 African Americans living with stroke and 19 family caregivers. Focus groups were audio-recorded and transcribed verbatim. For this secondary analysis, we coded qualitative data using the TIR framework.Results: Participants in this sample identified pre-stroke needs in addition to the TIR phases that span across the care continuum and into community living. We identified four important contextual factors and real-world conditions that operate in the background and influence the post-stroke needs of this specific population across the TIR framework: (1) religion, faith, and church, (2) healthcare delivery, (3) community, and (4) sentinel events.Conclusions: We propose a TIR model that expands upon the original TIR framework which includes factors important for consideration when developing and delivering community-based interventions among African Americans with stroke and family caregivers in the southeastern US.
- Subjects :
- Cultural Studies
Gerontology
Adult
Psychological intervention
Qualitative property
Community integration
03 medical and health sciences
0302 clinical medicine
Arts and Humanities (miscellaneous)
parasitic diseases
medicine
Humans
030212 general & internal medicine
Stroke
Stroke Belt
Qualitative Research
030505 public health
Family caregivers
Public Health, Environmental and Occupational Health
Social Support
Continuity of Patient Care
medicine.disease
Care Continuum
Focus group
United States
Black or African American
Caregivers
0305 other medical science
Psychology
Subjects
Details
- ISSN :
- 14653419
- Volume :
- 27
- Issue :
- 2
- Database :
- OpenAIRE
- Journal :
- Ethnicityhealth
- Accession number :
- edsair.doi.dedup.....a52379d37c7802fc4bb8c4dbd432ec4e