Back to Search
Start Over
The Impact of Incidental Findings Detected During Brain Imaging on Research Participants of the Rotterdam Study: An Interview Study
- Source :
- Cambridge Quarterly of Healthcare Ethics, 29(4):Pii s096318012000030, 542-556. Cambridge University Press, Cambridge Quarterly of Healthcare Ethics
- Publication Year :
- 2020
-
Abstract
- This interview study investigates the short- and long-term implications of incidental findings detected through brain imaging on research participants' lives and their surroundings. For this study, nine participants of the Rotterdam Scan Study with an incidental finding were approached and interviewed. When examining research participants' narratives on the impact of the disclosure of incidental findings, the authors identified five sets of tensions with regard to motivations for and expectations of research participation, preferences regarding disclosure, short- and long-term impacts and impacts on self and others. The paper shows: (1) that the impact of incidental findings may be greater than participants at first let on; (2) incidental findings can have significant effects on participants' social environment; and (3) participants may not feel prepared for disclosure even if incidental findings have been discussed during the informed consent process. The authors call for investigators to be aware of research participants' experiences and these short- and long-term impacts when designing suitable courses of action for the detection and management of incidental findings in research settings. This study is a result of the research project "Previously healthy? An ethical approach of incidental findings through imaging studies," which was funded by ZonMW, dossier number 731010004 (2013-2015). Additional funding for this project was awarded to Eline Bunnik by the WiRe Fellowship Program at the University of Munster, Germany (2019). Bomhof, CHC (corresponding author), Erasmus MC, Dept Med Eth Philosophy & Hist Med, Rotterdam, Netherlands.
- Subjects :
- Health (social science)
research ethics
ComputingMilieux_LEGALASPECTSOFCOMPUTING
0603 philosophy, ethics and religion
Developmental psychology
03 medical and health sciences
Rotterdam Study
incidental findings
0302 clinical medicine
Neuroimaging
Informed consent
Narrative
030212 general & internal medicine
Research ethics
Health Policy
Social environment
Articles
06 humanities and the arts
Issues, ethics and legal aspects
imaging studies
Action (philosophy)
interview study
social impact
Interview study
060301 applied ethics
Psychology
Subjects
Details
- Language :
- English
- ISSN :
- 09631801
- Database :
- OpenAIRE
- Journal :
- Cambridge Quarterly of Healthcare Ethics, 29(4):Pii s096318012000030, 542-556. Cambridge University Press, Cambridge Quarterly of Healthcare Ethics
- Accession number :
- edsair.doi.dedup.....a2596d16465d1bdd429ce54fba7d5b30