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Quality of Life Among Parents of Adolescent and Young Adult Brain Tumor Survivors
- Source :
- Journal of pediatric hematology/oncology, vol 39, iss 8
- Publication Year :
- 2017
- Publisher :
- Ovid Technologies (Wolters Kluwer Health), 2017.
-
Abstract
- We aimed to describe the quality of life (QOL) among parents of adolescent and young adult brain tumor survivors as well as parent, survivor, and diagnosis/treatment-related factors associated with adverse QOL. A cross-sectional study of 28 parents of adolescent and young adult brain tumor survivors (who were on average 10 y postdiagnosis) was used to assess QOL. Parent QOL was measured using the Patient-Reported Outcomes Measurement Information System Global Health measure. Factors associated with adverse parent QOL were explored using logistic regression including: parent, survivor, and diagnosis/treatment-related factors. Parent QOL was within the normal range; however, 40% scored below the clinical threshold of 0.5 SD below the mean for physical and mental health. Parent perceptions of greater family impact, survivor emotional/behavioral health problems, improved cognitive function, and recurrence were associated with adverse parent physical health. Parent anger/sorrow, uncertainty, survivor emotional/behavioral health problems, speech/language problems, and recurrence were associated with adverse parent mental health. Parental emotional resources and perceptions of improved survivor peer relationships were associated with greater parent physical and mental health. The impact of a brain tumor diagnosis and treatment on the QOL of parents may be significant. Interventions are needed to ensure that the needs of parents are met.
- Subjects :
- psychosocial
Male
Gerontology
Cross-sectional study
Emotions
Cardiorespiratory Medicine and Haematology
California
Cognition
0302 clinical medicine
7.1 Individual care needs
Quality of life
Surveys and Questionnaires
Odds Ratio
Medicine
Survivors
030212 general & internal medicine
Young adult
Cancer
Pediatric
Brain Neoplasms
Follow up studies
Hematology
Health Services
Middle Aged
humanities
Mental Health
Oncology
survivor
030220 oncology & carcinogenesis
population characteristics
Female
brain tumor
Adult
Adolescent
MEDLINE
Brain tumor
Basic Behavioral and Social Science
Article
Young Adult
03 medical and health sciences
Rare Diseases
Clinical Research
Behavioral and Social Science
Humans
Oncology & Carcinogenesis
business.industry
Neurosciences
social sciences
Odds ratio
medicine.disease
Brain Disorders
Brain Cancer
parent
Good Health and Well Being
Cross-Sectional Studies
Pediatrics, Perinatology and Child Health
Quality of Life
Management of diseases and conditions
business
Mind and Body
human activities
Follow-Up Studies
Subjects
Details
- ISSN :
- 10774114
- Volume :
- 39
- Database :
- OpenAIRE
- Journal :
- Journal of Pediatric Hematology/Oncology
- Accession number :
- edsair.doi.dedup.....9b6b707e16fdafaae7fc431e86583cfb