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Acromegaly in remission: a view from the partner
- Source :
- European Journal of Endocrinology, European Journal of Endocrinology, BioScientifica, 2021, 185 (6), pp.K19-K23. ⟨10.1530/EJE-21-0537⟩, European Journal of Endocrinology, 2021, 185 (6), pp.K19-K23. ⟨10.1530/EJE-21-0537⟩
- Publication Year :
- 2021
-
Abstract
- Objective A relative can be an asset in dealing with chronic illnesses, such as acromegaly, where quality of life (QoL) is altered even after remission. However, it has been shown that quality of life of caregivers can also be impacted. Our main objective was to compare the perception of acromegaly in remission in the patient–relative dyad. Methods In this observational study, 27 patients in remission and relatives were first asked to complete QoL, anxiety/depression and coping strategy questionnaires. Then, the patient’s body image and self-esteem were evaluated from both the patient’s and the relative’s point of view using the same questionnaires with modified instructions. Results Relatives had overall an accurate estimation of patient body image using the Figure Rating Scale by Stunkard. However, there were wide variations between the patient’s and the relative’s responses regarding self-esteem and body perception. The QoL of relatives was not altered and was significantly higher in the social domain than for the patient. Conclusions Our results show that relatives require education concerning all the steps involved in the management of acromegaly, as they likely do not fully understand the sequelae of acromegaly.
- Subjects :
- Adult
Male
medicine.medical_specialty
Adolescent
Endocrinology, Diabetes and Metabolism
Figure rating scale
MEDLINE
Young Adult
Endocrinology
Quality of life
Internal medicine
Surveys and Questionnaires
Acromegaly
Adaptation, Psychological
medicine
Body Image
Humans
Young adult
Depression (differential diagnoses)
Aged
Aged, 80 and over
[SDV.MHEP] Life Sciences [q-bio]/Human health and pathology
business.industry
General Medicine
Middle Aged
medicine.disease
Self Concept
Caregivers
Physical therapy
Quality of Life
Anxiety
Observational study
Female
medicine.symptom
business
[SDV.MHEP]Life Sciences [q-bio]/Human health and pathology
Follow-Up Studies
Subjects
Details
- ISSN :
- 1479683X and 08044643
- Volume :
- 185
- Issue :
- 6
- Database :
- OpenAIRE
- Journal :
- European journal of endocrinology
- Accession number :
- edsair.doi.dedup.....84be42c3d3783ec5dadec86b6ab50b55