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Inclusion of Racial and Ethnic Minorities in Genetic Research: Advance the Spirit by Changing the Rules?
- Source :
- Journal of Law, Medicine & Ethics. 39:502-512
- Publication Year :
- 2011
- Publisher :
- Cambridge University Press (CUP), 2011.
-
Abstract
- As genetic and genomic research has progressed since the sequencing of the human genome, scientists have continued to struggle to understand the role of genetic and socio-cultural factors in racial and ethnic health disparities. Recognition that race and ethnicity correlate imperfectly with differences in allele frequency, environmental exposures, and significant health outcomes has made framing the relationship between genetic variation, race, ethnicity, and disease one of the most heated debates of the genome era. Because racial and ethnic identities reflect a complicated mix of social and genetic factors, critics have argued that use of racial and ethnic categories as analytical variables in biomedical research lacks rigor, leads to potentially dangerous stereotyping in medical practice, and sends harmful messages of innate racial difference to the broader public.Concerns over the current lack of diversity in human genetic and genomic studies have developed in parallel to discussions of the appropriate use of racial and ethnic categories during the research process.
- Subjects :
- Male
Genetic Research
Ethnic group
Guidelines as Topic
Criminology
Race and health
Article
Interviews as Topic
Cultural diversity
Genetic variation
Humans
Women
Sociology
Minority Groups
0505 law
050502 law
Patient Selection
Health Policy
05 social sciences
Cultural Diversity
General Medicine
Biobank
Research Personnel
United States
Issues, ethics and legal aspects
Attitude
National Institutes of Health (U.S.)
Law
Female
Guideline Adherence
Inclusion (education)
Cohort study
Qualitative research
Subjects
Details
- ISSN :
- 1748720X and 10731105
- Volume :
- 39
- Database :
- OpenAIRE
- Journal :
- Journal of Law, Medicine & Ethics
- Accession number :
- edsair.doi.dedup.....75534cddf5e81fde2987dd54bfb288da