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Quality of life: Guidelines for the care of people with spina bifida
- Source :
- Journal of Pediatric Rehabilitation Medicine
- Publication Year :
- 2020
- Publisher :
- IOS Press, 2020.
-
Abstract
- Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida. The focus of these QOL Guidelines was to summarize the evidence and expert opinions on how to mitigate factors that negatively impact QOL/HRQOL or enhance the factors positively related to QOL/HRQOL, the measurement of QOL/HRQOL and the gaps that need to be addressed in future research.
- Subjects :
- Gerontology
Male
030506 rehabilitation
congenital, hereditary, and neonatal diseases and abnormalities
Adolescent
Physical Therapy, Sports Therapy and Rehabilitation
03 medical and health sciences
0302 clinical medicine
Quality of life (healthcare)
Surveys and Questionnaires
Medicine
Humans
pain
Child
Spinal Dysraphism
Health related quality of life
Life span
business.industry
Spina bifida
Rehabilitation
continence
Infant, Newborn
Infant
medicine.disease
humanities
nervous system diseases
spina bifida
health-related quality of life
quality of life
neural tube defects
Child, Preschool
Pediatrics, Perinatology and Child Health
Practice Guidelines as Topic
Female
Myelomeningocele
0305 other medical science
business
030217 neurology & neurosurgery
Spina Bifida Guideline
Subjects
Details
- Language :
- English
- ISSN :
- 18758894 and 18745393
- Volume :
- 13
- Issue :
- 4
- Database :
- OpenAIRE
- Journal :
- Journal of Pediatric Rehabilitation Medicine
- Accession number :
- edsair.doi.dedup.....708b5157c07cc6c6e4d931e1a44a600c