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Use and perceived relevance of health-related Internet sites and online contact with peers among young people with juvenile idiopathic arthritis
- Source :
- Rheumatology, 54(10), 1833-1841. Oxford University Press, Rheumatology (Oxford, England), 54(10), 1833. Oxford University Press
- Publication Year :
- 2015
-
Abstract
- OBJECTIVE: To evaluate the frequency of use and relevance of health-related Internet (HRI) sites and online peer support groups and their association with demographic, disease-related and psychosocial variables in young people with JIA. METHODS: In a cross-sectional study, 176 young people (10-27 years of age) with JIA were asked to complete a questionnaire. The frequency of using HRI sites (regarding information, medication use and aspects of JIA relating to social life), online peer contact and perceived relevance of HRI sites and online peer communication were determined. Associations with demographic variables, disease activity, medication, emotional behaviour and coping were also examined. RESULTS: Seventy-one per cent of the 142 respondents had used the Internet to search for general information on JIA, but specific topics, such as medication, were searched for less often. Twenty-five per cent of respondents had visited a forum or had contacted peers online. The perceived relevance of HRI sites and online peer contact was rated low (median 2.0 and 1.0, respectively; scale 0-10). Apart from female gender (P < 0.01), none of the demographic and disease-related factors were associated with HRI site use. Coping styles, confrontation and reassuring thoughts were associated with increased HRI site use, but only in males. Internalizing and externalizing problem behaviour were not significantly associated. CONCLUSION: The frequency of HRI site use among young people with JIA was less than expected and was considered of low relevance. HRI sites in their present form cannot replace traditional information as an additional source to increase knowledge.
- Subjects :
- Male
Coping (psychology)
INFORMATION
adolescent rheumatology
CHILDREN
Peer support
DISEASE-ACTIVITY
Severity of Illness Index
DMARDs
Social Networking
Surveys and Questionnaires
Adaptation, Psychological
ADOLESCENTS
Pharmacology (medical)
Non-U.S. Gov't
Child
Medicine(all)
Research Support, Non-U.S. Gov't
transition
education (patients)
Antirheumatic Agents
Transition
SELF-MANAGEMENT PROGRAM
The Internet
Female
Psychosocial
CHRONIC ILLNESS
Clinical psychology
Adult
medicine.medical_specialty
Adolescent
Observational Study
Research Support
digital information
Peer Group
Disease activity
Young Adult
ASSESSMENT QUESTIONNAIRE
Patient Education as Topic
Rheumatology
medicine
Journal Article
Juvenile
Humans
Education (patients)
coping factors
Internet
business.industry
Social Support
Peer group
SUPPORT GROUPS
Juvenile idiopathic arthritis
Arthritis, Juvenile
RHEUMATOID-ARTHRITIS
Adolescent rheumatology
Digital information
Coping factors
Self Care
Cross-Sectional Studies
Physical therapy
juvenile idiopathic arthritis
Observational study
business
COPING STYLES
Subjects
Details
- Language :
- English
- ISSN :
- 14620324
- Database :
- OpenAIRE
- Journal :
- Rheumatology, 54(10), 1833-1841. Oxford University Press, Rheumatology (Oxford, England), 54(10), 1833. Oxford University Press
- Accession number :
- edsair.doi.dedup.....6fb3091b50f0e22247b5430a2f2fc143