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Quality of life measurement in rosacea. Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa

Authors :
P. V. Chernyshov
A. Y. Finlay
L. Tomas‐Aragones
M. Steinhoff
L. Manolache
N. Pustisek
C. Dessinioti
A. Svensson
S. E. Marron
A. Bewley
C. Salavastru
B. Dréno
A. Suru
D. Koumaki
D. Linder
A. W. M. Evers
D. Abeni
M. Augustin
S. S. Salek
A. Nassif
V. Bettoli
J. С. Szepietowski
C. C. Zouboulis
Université de Kiev
Cardiff University
University of Zaragoza - Universidad de Zaragoza [Zaragoza]
Hamad Medical Corporation [Doha, Qatar]
Weill Cornell Medicine [Qatar]
Qatar University
Weill Cornell Medicine [Cornell University]
Cornell University [New York]
Dali Medical
Partenaires INRAE
Children’s Hospital Srebrnjak [Zagreb, Croatia]
University of Athens Medical School [Athens]
Skane University Hospital [Malmo]
Lund University [Lund]
Royo Villanova Hospital
Whipps Cross University Hospital
University of Medicine and Pharmacy 'Carol Davila' Bucharest (UMPCD)
Immunology and New Concepts in ImmunoTherapy (INCIT)
Université d'Angers (UA)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre National de la Recherche Scientifique (CNRS)-Centre hospitalier universitaire de Nantes (CHU Nantes)-Nantes Université - UFR de Médecine et des Techniques Médicales (Nantes Univ - UFR MEDECINE)
Nantes Université - pôle Santé
Nantes Université (Nantes Univ)-Nantes Université (Nantes Univ)-Nantes Université - pôle Santé
Nantes Université (Nantes Univ)-Nantes Université (Nantes Univ)
University of Crete [Heraklion] (UOC)
Medical University of Graz
Universiteit Leiden
Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS)
Universitaetsklinikum Hamburg-Eppendorf = University Medical Center Hamburg-Eppendorf [Hamburg] (UKE)
University of Hertfordshire [Hatfield] (UH)
Institut Pasteur [Paris] (IP)
Università degli Studi di Ferrara = University of Ferrara (UniFE)
Wrocław Medical University
Medizinische Hochschule Brandenburg Theodor Fontane / Brandenburg Medical School Theodor-Fontane (MHB Theodor Fontane)
Source :
Journal of the European Academy of Dermatology and Venereology, Journal of the European Academy of Dermatology and Venereology, 2023, 37 (5), pp.954-964. ⟨10.1111/jdv.18918⟩
Publication Year :
2023
Publisher :
HAL CCSD, 2023.

Abstract

The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.

Details

Language :
English
ISSN :
09269959 and 14683083
Database :
OpenAIRE
Journal :
Journal of the European Academy of Dermatology and Venereology, Journal of the European Academy of Dermatology and Venereology, 2023, 37 (5), pp.954-964. ⟨10.1111/jdv.18918⟩
Accession number :
edsair.doi.dedup.....6523fcca85c3a3e5d0b4ac299db1a4e5