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Coding practice in national and regional kidney biopsy registries
- Source :
- BMC nephrology, 22(1):193. BioMed Central, BMC Nephrology, On behalf of the Kidney Biopsy Codes for Pathologists project (www.kibico.org) 2021, ' Coding practice in national and regional kidney biopsy registries ', BMC Nephrology, vol. 22, no. 1, 193 . https://doi.org/10.1186/s12882-021-02365-3, BMC Nephrology, Vol 22, Iss 1, Pp 1-10 (2021), BMC nephrology, Bmc Nephrology, 22(1):193. BioMed Central Ltd
- Publication Year :
- 2021
-
Abstract
- Background Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practice. Methods A literature search was undertaken to identify biopsy registries for medical kidney diseases. These data were supplemented with information from personal contacts and from registry websites. A questionnaire was sent to all identified registries, investigating age of registries, scope, method of coding, possible mapping to international terminologies as well as self-reported problems and suggestions for improvement. Results Sixteen regional or national kidney biopsy registries were identified, of which 11 were older than 10 years. Most registries were located either in Europe (10/16) or in Asia (4/16). Registries most often use a proprietary coding system (12/16). Only a few of these coding systems were mapped to SNOMED CT (1), older SNOMED versions (2) or ERA-EDTA PRD (3). Lack of maintenance and updates of the coding system was the most commonly reported problem. Conclusions There were large gaps in the global coverage of kidney biopsy registries. Limited use of international coding systems among existing registries hampers interoperability and exchange of data. The study underlines that the use of a common and uniform coding system is necessary to fully realize the potential of kidney biopsy registries.
- Subjects :
- Nephrology
medicine.medical_specialty
GLOMERULAR-DISEASE
Databases, Factual
NEPHROPATHY
Biopsy
UNITED-STATES
CHILDREN
DIAGNOSIS
FREQUENCY
Global Health
Kidney
Internal medicine
Surveys and Questionnaires
medicine
Humans
Medical physics
RENAL BIOPSY
ddc:610
NETWORK
Registries
Medical diagnosis
Health policy
SNOMED CT
medicine.diagnostic_test
business.industry
Coding
Research
Clinical Coding
Renal pathology
Systematized Nomenclature of Medicine
Kidney biopsy registry
medicine.disease
Diseases of the genitourinary system. Urology
Coding system
PATHOLOGY
Vocabulary, Controlled
Systematic review
EXPERIENCE
Kidney Diseases
Human medicine
RC870-923
business
Coding (social sciences)
Kidney disease
Nephropathology
Subjects
Details
- Language :
- English
- ISSN :
- 14712369
- Volume :
- 22
- Issue :
- 1
- Database :
- OpenAIRE
- Journal :
- BMC nephrology
- Accession number :
- edsair.doi.dedup.....614613e0d7fc55c4fa2996a69e301fb3