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The role of social networks in prognostic understanding of older adults with advanced cancer

Authors :
Veronica Yu
Sule Yilmaz
Jorie Freitag
Kah Poh Loh
Lee Kehoe
Grace Digiovanni
Jessica Bauer
Chandrika Sanapala
Ronald M. Epstein
Reza Yousefi-Nooraie
Supriya Mohile
Source :
Patient Education and Counseling. 106:135-141
Publication Year :
2023
Publisher :
Elsevier BV, 2023.

Abstract

Explore how older patients utilize their social networks to inform prognostic understanding.In a pilot study of adults (≥65 years old) with advanced cancer, 16 patients completed surveys, social network maps, and semi-structured interviews exploring with whom they preferred to communicate about their illness. Interviews were analyzed using open-coding, and codes were categorized into emergent themes. Social network maps and themes were analyzed via mixed-methods social network analysis (MMSNA). Three case examples with diverse network characteristics and communication patterns were selected for further analysis.Three overarching themes (i.e., prognostic understanding, social support, and therapeutic alliance) revealed that patients' prognostic understanding was strongly influenced by the quality of the social support patients perceived from members of their social networks. Patients demonstrated prognostic understanding when they reported close relationships and open communication with their network members. Case examples revealed some ways that patients sought information and had better sense of their prognosis when they had supportive social networks.Findings illustrate how understanding social networks may provide information on how older adults with cancer seek, share, and process prognostic information.

Details

ISSN :
07383991
Volume :
106
Database :
OpenAIRE
Journal :
Patient Education and Counseling
Accession number :
edsair.doi.dedup.....5e96f7c3ab5717c0d7782311e9ed9231
Full Text :
https://doi.org/10.1016/j.pec.2022.10.009