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Barriers to conservative care from patients' and nephrologists' perspectives: the CKD-REIN study

Authors :
Aghilès, Hamroun
Elodie, Speyer
Carole, Ayav
Christian, Combe
Denis, Fouque
Christian, Jacquelinet
Maurice, Laville
Sophie, Liabeuf
Ziad A, Massy
Roberto, Pecoits-Filho
Bruce M, Robinson
François, Glowacki
Bénédicte, Stengel
Luc, Frimat
Centre de recherche en épidémiologie et santé des populations (CESP)
Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Paul Brousse-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Saclay
Service de Néphrologie et Transplantation rénale [CHRU-lille]
Centre Hospitalier Régional Universitaire [Lille] (CHRU Lille)
Service d'Epidémiologie et Evaluations Cliniques [CHRU Nancy] (Pôle S2R)
Centre Hospitalier Régional Universitaire de Nancy (CHRU Nancy)
Service de Néphrologie-transplantation-dialyse [Bordeaux]
CHU Bordeaux [Bordeaux]
Bioingénierie tissulaire (BIOTIS)
Université de Bordeaux (UB)-Institut National de la Santé et de la Recherche Médicale (INSERM)
Cardiovasculaire, métabolisme, diabétologie et nutrition (CarMeN)
Université Claude Bernard Lyon 1 (UCBL)
Université de Lyon-Université de Lyon-Hospices Civils de Lyon (HCL)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement (INRAE)
Centre Hospitalier Lyon Sud [CHU - HCL] (CHLS)
Hospices Civils de Lyon (HCL)
Agence de la biomédecine [Saint-Denis la Plaine]
Université Paris-Saclay
Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)
CHU Amiens-Picardie
Université de Picardie Jules Verne (UPJV)
Mécanismes physiopathologiques et conséquences des calcifications vasculaires - UR UPJV 7517 (MP3CV)
Université de Picardie Jules Verne (UPJV)-CHU Amiens-Picardie
Chronic Kidney Disease - Réseau Epidémiologie et Information en Néphrologie (CKD REIN)
Institut National de la Santé et de la Recherche Médicale (INSERM)
Épidémiologie et recherches translationnelles sur les maladies rénales et cardiovasculaires (EPREC) (U1018 (Équipe 5))
Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Paul Brousse-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Saclay-Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Paul Brousse-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Saclay
Service Néphrologie/Dialyse [AP-HP Ambroise-Paré]
Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Ambroise Paré [AP-HP]
Arbor Research Collaborative for Health
Service de Néphrologie [CHRU Nancy]
Adaptation, mesure et évaluation en santé. Approches interdisciplinaires (APEMAC)
Université de Lorraine (UL)
CKD-REIN study: Natalia Alencar de Pinho, Carole Ayav, Serge Briançon, Dorothée Cannet, Christian Combe, Denis Fouque, Luc Frimat, Yves-Edouard Herpe, Christian Jacquelinet, Maurice Laville, Ziad A Massy, Christophe Pascal, Bruce M Robinson, Bénédicte Stengel, Céline Lange, Karine Legrand, Sophie Liabeuf, Marie Metzger, Elodie Speyer, Thierry Hannedouche, Bruno Moulin, Sébastien Mailliez, Gaétan Lebrun, Eric Magnant, Gabriel Choukroun, Benjamin Deroure, Adeline Lacraz, Guy Lambrey, Jean Philippe Bourdenx, Marie Essig, Thierry Lobbedez, Raymond Azar, Hacène Sekhri, Mustafa Smati, Mohamed Jamali, Alexandre Klein, Michel Delahousse, Christian Combe, Séverine Martin, Isabelle Landru, Eric Thervet, Ziad A Massy, Philippe Lang, Xavier Belenfant, Pablo Urena, Carlos Vela, Luc Frimat, Dominique Chauveau, Victor Panescu, Christian Noel, François Glowacki, Maxime Hoffmann, Maryvonne Hourmant, Dominique Besnier, Angelo Testa, François Kuentz, Philippe Zaoui, Charles Chazot, Laurent Juillard, Stéphane Burtey, Adrien Keller, Nassim Kamar, Denis Fouque, Maurice Laville
CarMeN, laboratoire
Source :
Nephrology Dialysis Transplantation, Nephrology Dialysis Transplantation, 2022, 37 (12), pp.2438-2448. ⟨10.1093/ndt/gfac009⟩
Publication Year :
2021

Abstract

Background Conservative care is increasingly considered an alternative to kidney replacement therapy for kidney failure management, mostly among the elderly. We investigated its status and the barriers to its implementation from patients’ and providers’ perspectives. Methods We analysed data from 1204 patients with advanced chronic kidney disease (CKD) [estimated glomerular filtration rate (eGFR) Results All participating facilities reported they were routinely able to offer conservative care, but only 37% had written protocols and only 5% had a person or team primarily responsible for it. Overall, 6% of patients were estimated to use conservative care. Among nephrologists, 82% reported they were fairly or extremely comfortable discussing conservative care, but only 28% usually or always offered this option for older (>75 years) patients approaching kidney failure. They used various terminology for this care, with conservative management and non-dialysis care mentioned most often. Among patients, 5% of those >75 years reported receiving information about this option and 2% preferring it. Conclusions Although reported by nephrologists to be widely available and easily discussed, conservative care is only occasionally offered to older patients, most of whom report they were not informed of this option. The lack of a person or team responsible for conservative care and unclear information appear to be key barriers to its implementation.

Details

ISSN :
14602385 and 09310509
Volume :
37
Issue :
12
Database :
OpenAIRE
Journal :
Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association
Accession number :
edsair.doi.dedup.....5d54b4866f7843a23b9cbb8247fdab0f