Back to Search Start Over

Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients

Authors :
Aina Gayà-Barroso
Juan González-Moreno
Adrián Rodríguez
Tomás Ripoll-Vera
Inés Losada-López
Margarita Gili
Milena Paneque
Eugenia Cisneros-Barroso
Source :
International Journal of Environmental Research and Public Health; Volume 19; Issue 18; Pages: 11721
Publication Year :
2022

Abstract

The purpose of this study was to explore the occupational performance and needs of patients with hereditary transthyretin amyloidosis (ATTRv). A semi-structured interview was conducted by an occupational therapist with 44 patients with Val50Met-ATTRv recruited through patient associations. The interview addressed three related dimensions. The first one, the physical dimension, was evaluated using the Spanish versions of the Barthel Index, the Lawton and Brody scale, and the Norfolk questionnaire; the second one, the psychological dimension, was assessed with the Warwick–Edinburgh Mental Well-Being Scale and the SF-36 questionnaire; and the third dimension, the occupational performance, was assessed through unstructured questions on daily occupations, work, roles, and hobbies given the lack of standardized scales. Twenty participants (45.4%) responded that the disease had affected their basic activities of daily living, twenty- four (54.5%) perceived an impact on their instrumental activities of daily living, and all the participants reported that the disease symptoms had affected their ability to perform advanced activities as well as their employment status. Only three patients (6.8%) reported a lack of psychological impairment following disease diagnosis. These findings suggest that a semi-structured interview conducted by an occupational therapist can provide essential information that should be considered for the implementation of occupational therapy programs targeting patients living with a diagnosis of ATTRv.

Details

ISSN :
16604601
Volume :
19
Issue :
18
Database :
OpenAIRE
Journal :
International journal of environmental research and public health
Accession number :
edsair.doi.dedup.....561f5882e164e5b9f5d6414c75375d89