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Self-management interventions for adults living with Chronic Obstructive Pulmonary Disease (COPD) : The development of a Core Outcome Set for COMPAR-EU project
- Source :
- Dipòsit Digital de Documents de la UAB, Universitat Autònoma de Barcelona, PLoS One, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname, PLoS ONE, Vol 16, Iss 3, p e0247522 (2021), PLoS ONE, PLOS ONE
- Publication Year :
- 2021
-
Abstract
- Background A large body of evidence suggests that self-management interventions (SMIs) may improve outcomes in chronic obstructive pulmonary disease (COPD). However, accurate comparisons of the relative effectiveness of SMIs are challenging, partly due to heterogeneity of outcomes across trials and uncertainty about the importance of these outcomes for patients. We aimed to develop a core set of patient-relevant outcomes (COS) for SMIs trials to enhance comparability of interventions and ensure person-centred care. Methods We undertook an innovative approach consisting of four interlinked stages: i) Development of an initial catalogue of outcomes from previous EU-funded projects and/or published studies, ii) Scoping review of reviews on patients and caregivers’ perspectives to identify outcomes of interest, iii) Two-round Delphi online survey with patients and patient representatives to rate the importance of outcomes, and iv) Face-to-face consensus workshop with patients, patient representatives, health professionals and researchers to develop the COS. Results From an initial list of 79 potential outcomes, 16 were included in the COS plus one supplementary outcome relevant to all participants. These were related to patient and caregiver knowledge/competence, self-efficacy, patient activation, self-monitoring, adherence, smoking cessation, COPD symptoms, physical activity, sleep quality, caregiver quality of life, activities of daily living, coping with the disease, participation and decision-making, emergency room visits/admissions and cost effectiveness. Conclusion The development of the COPD COS for the evaluation of SMIs will increase consistency in the measurement and reporting of outcomes across trials. It will also contribute to more personalized health care and more informed health decisions in clinical practice as patients’ preferences regarding COPD outcomes are more systematically included.
- Subjects :
- Male
Health Knowledge, Attitudes, Practice
Activities of daily living
Delphi Technique
Pulmonology
Physiology
Cost effectiveness
Cost-Benefit Analysis
medicine.medical_treatment
Psychological intervention
Surveys
Pulmonary Disease, Chronic Obstructive
0302 clinical medicine
Activities of Daily Living
Medicine and Health Sciences
030212 general & internal medicine
Multidisciplinary
Self-management
Research Assessment
3. Good health
Treatment Outcome
Systematic review
Caregivers
Research Design
Medicine
Female
Research Article
Adult
medicine.medical_specialty
Patients
Systematic Reviews
Chronic Obstructive Pulmonary Disease
Science
Patient Advocacy
Research and Analysis Methods
Competence (law)
03 medical and health sciences
Quality of life (healthcare)
medicine
Humans
Exercise
Survey Research
business.industry
Self-Management
Biology and Life Sciences
Health Surveys
Self Care
Health Care
030228 respiratory system
Family medicine
Quality of Life
Patient Compliance
Smoking cessation
Smoking Cessation
Physiological Processes
Sleep
business
Subjects
Details
- ISSN :
- 19326203
- Database :
- OpenAIRE
- Journal :
- Dipòsit Digital de Documents de la UAB, Universitat Autònoma de Barcelona, PLoS One, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname, PLoS ONE, Vol 16, Iss 3, p e0247522 (2021), PLoS ONE, PLOS ONE
- Accession number :
- edsair.doi.dedup.....542b3ce29fd07ab54011736c3b089a88