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Knowledge, attitudes, and barriers to carrier screening for the Ashkenazi Jewish panel: a Florida experience

Authors :
Elizabeth Herman
Jessica R. L. Warsch
Sean Warsch
L. Zakarin
Deborah Wasserman
Jodi D. Hoffman
Adele Schneider
Deborah Barbouth
Source :
Journal of Community Genetics. 5:223-231
Publication Year :
2014
Publisher :
Springer Science and Business Media LLC, 2014.

Abstract

The knowledge, attitudes, and barriers to Jewish genetic diseases (JGDs) and screening and their relative importance in reproductive decision-making were assessed in a population-based sample of Ashkenazi Jewish young adults in Florida. These adults attended educational screening fairs hosted by The Victor Center for the Prevention of Jewish Genetic Diseases at the University of Miami. Parametric and nonparametric tests were used as appropriate to analyze data from a single group pretest/posttest design. Four hundred twelve individuals (mean age = 24.9; 54.7 % female, 45.3 % male) completed the questionnaires. Participants' level of knowledge increased from pre- to post-intervention (81.4 vs. 91.0 %; p

Details

ISSN :
18686001 and 1868310X
Volume :
5
Database :
OpenAIRE
Journal :
Journal of Community Genetics
Accession number :
edsair.doi.dedup.....48efa963032f5ec462a7ab2af08b13b1
Full Text :
https://doi.org/10.1007/s12687-013-0179-4