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‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

Authors :
Nicholas J. Hulbert-Williams
Brooke Swash
Ros Bramwell
Apollo - University of Cambridge Repository
Source :
Journal of Health Psychology. 23:1464-1475
Publication Year :
2016
Publisher :
SAGE Publications, 2016.

Abstract

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

Details

ISSN :
14617277 and 13591053
Volume :
23
Database :
OpenAIRE
Journal :
Journal of Health Psychology
Accession number :
edsair.doi.dedup.....473c3b09db7c8dcb09be0ba3ae4c5d35