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'They're all struggling as well': social and economic barriers and facilitators to self-managing chronic illness among marginalized people who use drugs

Authors :
Lisa M. Boucher
Esther S. Shoemaker
Clare E. Liddy
Lynne Leonard
Paul A. MacPherson
Justin Presseau
Alana Martin
Dave Pineau
Christine Lalonde
Nic Diliso
Terry Lafleche
Michael Fitzgerald
Claire E. Kendall
Source :
International journal of qualitative studies on health and well-being. 17(1)
Publication Year :
2022

Abstract

Self-management is recommended for addressing chronic conditions, and self-management programmes improve health behaviours and outcomes. However, social and economic factors have been neglected in self-management research, despite their relevance for marginalized groups. Thus, we aimed to explore barriers and facilitators that influence self-management among socioeconomically marginalized people who use drugs (PWUD).Using community-based participatory methods, we developed a qualitative interview guide and conducted peer-led recruitment. Participants were admitted into the study after self-identifying as using non-prescribed drugs, having a chronic health issue, and experiencing socioeconomic marginalization. Data were analysed using reflexive thematic analysis, taking a relational autonomy lens.Participants highlighted substantial barriers to managing their health issues, mostly stemming from their social and economic environments, such as unstable housing, low income, lack of supportive social networks, and negative healthcare experiences. Participants also described how their ability to self-manage their chronic conditions benefited from specific aspects of social interactions, including close relationships, community connectedness, and engaging in peer support.Our findings suggest that structural interventions are needed to support self-management among marginalized PWUD, especially stable housing. Self-management supports for PWUD would benefit from including a range of low-barrier community-based options, peer work opportunities, and advocacy for needs.

Details

ISSN :
17482631
Volume :
17
Issue :
1
Database :
OpenAIRE
Journal :
International journal of qualitative studies on health and well-being
Accession number :
edsair.doi.dedup.....46001f40a050cddb15d5ac06813d30e9