End of life decisions: Tragic choices in neo-natalogy

The observation of decision-making processes of end of life within several French neonatal units has revealed a diversity which resists any overall explanation and demands a local interpretation. This article details the characteristics motivating a critical care in neonatal intensive care units. Each service constructs a decision-making framework (based on operating modes, medical criteria, moral positioning, and parents’ role) in order to be able to face the heavy burden of uncertainty and responsibility when faced with the question: “What is a life worth living?”