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'Hold on' (Bambelela)! Lyrical interpretations of participation in an HIV prevention clinical trial
- Source :
- Culture, healthsexuality. 20(11)
- Publication Year :
- 2018
-
Abstract
- During a five-day workshop, former clinical trial participants and local musicians wrote the lyrics and recorded a song about an HIV prevention trial. Born of concerns about misconceptions regarding experimental drug trials, the aim was to engender engagement with medical researchers and open dialogue about the risks and benefits of trial participation. Composing lyrics that highlighted their credibility as communicators of medical scientific knowledge and their selfless sacrifice to stem the transmission of HIV, women performed their social positioning and cultural authority in contrast to men as well as other women not part of the trial. While involvement in HIV prevention initiatives often attracts stigma, scorn and criticism, the song's lyrics highlighted women's new-found identities as heroines searching for a solution to the spread of HIV, challenging these stereotypes. Methodologically, the paper describes a novel approach that uses artistic expression for public engagement with biomedical research.
- Subjects :
- Male
medicine.medical_specialty
Health (social science)
Research Subjects
Social Stigma
Human immunodeficiency virus (HIV)
HIV Infections
medicine.disease_cause
Education
03 medical and health sciences
Young Adult
0302 clinical medicine
medicine
Humans
030212 general & internal medicine
Public engagement
Psychiatry
Qualitative Research
Clinical Trials as Topic
030505 public health
Public Health, Environmental and Occupational Health
Community Participation
Lyrics
3. Good health
Clinical trial
Female
0305 other medical science
Psychology
Music
Subjects
Details
- ISSN :
- 14645351
- Volume :
- 20
- Issue :
- 11
- Database :
- OpenAIRE
- Journal :
- Culture, healthsexuality
- Accession number :
- edsair.doi.dedup.....2660eece9ba91cd035df917d498361e5