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Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5–12) Profile: A Conceptual Framework
Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5–12) Profile: A Conceptual Framework
- Source :
- Journal of burn care & research : official publication of the American Burn Association, vol 42, iss 6, J Burn Care Res
- Publication Year :
- 2021
- Publisher :
- Oxford University Press (OUP), 2021.
-
Abstract
- Pediatric burn injuries can alter the trajectory of the survivor’s entire life. Patient-centered outcome measures are helpful to assess unique physical and psychosocial needs and long-term recovery. This study aimed to develop a conceptual framework to measure pediatric burn outcomes in survivors aged 5 to 12 years as a part of the School-Aged Life Impact Burn Recovery Evaluation Computer Adaptive Test (SA-LIBRE5–12 CAT) development. This study conducted a systematic literature review guided by the WHO International Classification of Functioning—Child and Youth and domains in the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire5–18. Interviews with eight parents and seven clinicians were conducted to identify important domains in child recovery. One clinician focus group with four clinicians was completed to identify gaps in the preliminary framework, and semiweekly expert consensus meetings were conducted with three experts to solidify the framework. Qualitative data were analyzed by grounded theory methodology. Three major thematic outcome domains emerged: 1) Physical Functioning: fine motor and upper extremity, gross motor and lower extremity, pain, skin symptoms, sleep and fatigue, and physical resilience; 2) Psychological Functioning: cognitive, behavioral, emotional, resilience, and body image; and 3) Family and Social Functioning: family relationships, and parental satisfaction, school, peer relations, and community participation. The framework will be used to develop item banks for a CAT-based assessment of school-aged children’s health and developmental outcomes, which will be designed for clinical and research use to optimize interventions, personalize care, and improve long-term health outcomes for burned children.
- Subjects :
- Male
Physical Injury - Accidents and Adverse Effects
Adolescent
media_common.quotation_subject
Clinical Sciences
Gross motor skill
Psychological intervention
Anxiety
Article
Grounded theory
03 medical and health sciences
0302 clinical medicine
Quality of life (healthcare)
7.1 Individual care needs
International Classification of Functioning, Disability and Health
Clinical Research
Surveys and Questionnaires
Behavioral and Social Science
Humans
Medicine
Survivors
Child
media_common
Pediatric
Resilience
business.industry
Prevention
Pain Research
Rehabilitation
030208 emergency & critical care medicine
Resilience, Psychological
Emergency & Critical Care Medicine
Focus group
Motor Skills Disorders
Mental Health
Good Health and Well Being
Emergency Medicine
Psychological
Female
Surgery
Management of diseases and conditions
Psychological resilience
Chronic Pain
Burns
business
Mind and Body
Psychosocial
030217 neurology & neurosurgery
Clinical psychology
Subjects
Details
- ISSN :
- 15590488 and 1559047X
- Volume :
- 42
- Database :
- OpenAIRE
- Journal :
- Journal of Burn Care & Research
- Accession number :
- edsair.doi.dedup.....265b47cf9bbd82a61bcd5cb22f42255e
- Full Text :
- https://doi.org/10.1093/jbcr/irab104