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Global report on preterm birth and stillbirth (6 of 7): ethical considerations
- Source :
- BMC Pregnancy and Childbirth, Vol 10, Iss Suppl 1, p S6 (2010), BMC Pregnancy and Childbirth
- Publication Year :
- 2010
- Publisher :
- BioMed Central, 2010.
-
Abstract
- Introduction Despite the substantial global burden of preterm and stillbirth, little attention has been given to the ethical considerations related to research and interventions in the global context. Ethical dilemmas surrounding reproductive decisions and the care of preterm newborns impact the delivery of interventions, and are not well understood in low-resource settings. Issues such as how to address the moral and cultural attitudes surrounding stillbirths, have cross-cutting implications for global visibility of the disease burden. This analysis identifies ethical issues impacting definitions, discovery, development, and delivery of effective interventions to decrease the global burden of preterm birth and stillbirth. Methods This review is based on a comprehensive literature review; an ethical analysis of other articles within this global report; and discussions with GAPPS's Scientific Advisory Council, team of international investigators, and a community of international experts on maternal, newborn, and child health and bioethics from the 2009 International Conference on Prematurity and Stillbirth. The literature review includes articles in PubMed, Academic Search Complete (EBSCO), and Philosopher's Index with a range of 1995-2008. Results Advancements in discovery science relating to preterm birth and stillbirth require careful consideration in the design and use of repositories containing maternal specimens and data. Equally important is the need to improve clinical translation from basic science research to delivery of interventions, and to ensure global needs inform discovery science agenda-setting. Ethical issues in the development of interventions include a need to balance immediate versus long-term impacts—such as caring for preterm newborns rather than preventing preterm births. The delivery of interventions must address: women's health disparities as determinants of preterm birth and stillbirth; improving measurements of impact on equity in coverage; balancing maternal and newborn outcomes in choosing interventions; and understanding the personal and cross-cultural experiences of preterm birth and stillbirth among women, families and communities. Conclusion Efforts to improve visibility, funding, research and the successful delivery of interventions for preterm birth and stillbirth face a number of ethical concerns. Thoughtful input from those in health policy, bioethics and international research ethics helped shape an interdisciplinary global action agenda to prevent preterm birth and stillbirth.
- Subjects :
- Pediatrics
medicine.medical_specialty
Biomedical Research
education
Psychological intervention
Context (language use)
1110 Nursing
Review
Prenatal care
lcsh:Gynecology and obstetrics
Health Services Accessibility
1117 Public Health and Health Services
Nursing
Pregnancy
Obstetrics and Gynaecology
Medicine
Humans
Healthcare Disparities
Obstetrics & Reproductive Medicine
Developing Countries
Fetal Death
Disease burden
Health policy
lcsh:RG1-991
Ethics
Science & Technology
GAPPS Review Group
business.industry
Data Collection
Infant, Newborn
Obstetrics and Gynecology
Obstetrics & Gynecology
Prenatal Care
Bioethics
Stillbirth
medicine.disease
Health equity
Socioeconomic Factors
Premature birth
Premature Birth
1114 Paediatrics and Reproductive Medicine
Female
business
Life Sciences & Biomedicine
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- BMC Pregnancy and Childbirth, Vol 10, Iss Suppl 1, p S6 (2010), BMC Pregnancy and Childbirth
- Accession number :
- edsair.doi.dedup.....23940a7d35ca7e267f6aab8a9d5a568f