Common themes and challenges in hemophilia care: a multinational perspective

WOS: 000451511200001
PubMed ID: 30073913
Objective: To identify ways that provision of hemophilia care can be maximized at the local level, irrespective of available resources or cultural or geographic challenges. Methods: The SHIELD group used its multinational experience to share examples of local initiatives that have been employed to deliver optimal hemophilia care. Results: The examples were reviewed and categorized into four key themes: guidelines and algorithms for delivery of care; collaboration with patients and allied groups for care and education; registries for the monitoring of treatment and outcomes and health care planning and delivery; and opportunities for personalization of care. These themes were then incorporated into a road map for collaborative care in hemophilia that reflected the contribution of best practice. Discussion: Differing healthcare reimbursement systems, budgetary constraints, and geographical and cultural factors make it difficult for any country to fully deliver ideal care for people with hemophilia. The SHIELD approach for collaborative care provides illustrative examples of how four key themes can be used to optimize hemophilia care in any setting.
Bayer Pharma Plc
The authors are members of the SHIELD (Supporting Hemophilia through International Education, Learning and Development) group, an independent panel of physicians with expert interest in the treatment of haemophilia. Formation of the SHIELD group and its meetings were supported by Bayer Pharma Plc. Members received honoraria for attendance at meetings but no honoraria were paid for contributions to this manuscript. This publication and its content are solely the responsibility of the authors. Medical writing assistance was provided by Clark Health Communications under the direction of the authors and paid for by Bayer Pharma Plc.