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Initial validation of a patient-reported measure of compassion:Determining the content validity and clinical sensibility among patients living with a life-limiting and incurable illness
- Source :
- Sinclair, S, Jaggi, P, Hack, T F, Russell, L, McClement, S E, Cuthbertson, L, Selman, L E & Leget, C 2020, ' Initial validation of a patient-reported measure of compassion : Determining the content validity and clinical sensibility among patients living with a life-limiting and incurable illness ', Patient . https://doi.org/10.1007/s40271-020-00409-8
- Publication Year :
- 2020
-
Abstract
- Background: Although compassionate care is considered a cornerstone of quality palliative care, there is a paucity of valid and reliable measures to study, assess, and evaluate how patients experience compassion/compassionate care in their care.Objective: To develop a patient-reported compassion measure for use in research and clinical practice with established content-related validity evidence for the items, question stems, and response scale.Methods: Content validation for an initial 109 items was conducted through a two-round modified Delphi technique, followed by cognitive interviews with patients. A panel of international, Subject Matter Experts (SMEs) and a Patient Advisory Group (PAG) assessed the items for their relevancy to their associated domain of compassion, yielding an Item-level Content Validity Index (I-CVI), which was used to determine content modifications. The SMEs and the PAG also provided narrative feedback on the clarity, flow, and wording of theinstructions, questions, and response scale, with items being modified accordingly. Cognitive interviews were conducted with 16 patients to further assess the clarity, comprehensibility, and readability of each item within therevised item pool.Results: The first round of the Delphi review produced an overall CVI of 72% among SMEs and 80% among the PAG for the 109 items. Delphi panelists then reviewed a revised measure containing 84 items, generating an overallCVI of 84% for SMEs and 86% for the PAG. Sixty-eight items underwent further testing via cognitive interviews with patients, resulting in an additional 14 items being removed.Conclusions: Having established this initial validity evidence, further testing to assess internal consistency, test-retest reliability, factor structure, and relationships to other variables is required to produce the first valid, reliable,and clinically informed patient-reported measure of compassion.
- Subjects :
- Adult
Male
Palliative care
Delphi Technique
Psychometrics
Patient-reported measure
Health administration
law.invention
Interviews as Topic
03 medical and health sciences
Clinical sensibility
0302 clinical medicine
law
Surveys and Questionnaires
Compassion
Content validity
Humans
Terminally Ill
030212 general & internal medicine
Patient Reported Outcome Measures
Reliability (statistics)
Qualitative Research
Aged
Aged, 80 and over
030503 health policy & services
Content Validity
Reproducibility of Results
Cognition
Middle Aged
Readability
3. Good health
Psychometric properties
Scale (social sciences)
CLARITY
Quality of Life
Female
0305 other medical science
Psychology
Comprehension
Clinical psychology
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- Sinclair, S, Jaggi, P, Hack, T F, Russell, L, McClement, S E, Cuthbertson, L, Selman, L E & Leget, C 2020, ' Initial validation of a patient-reported measure of compassion : Determining the content validity and clinical sensibility among patients living with a life-limiting and incurable illness ', Patient . https://doi.org/10.1007/s40271-020-00409-8
- Accession number :
- edsair.doi.dedup.....1197f5989c7a6af13aad5ac92d89f996