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Quality of Life Perspectives of People With Amyotrophic Lateral Sclerosis and Their Caregivers
- Source :
- The American Journal of Occupational Therapy. 71:7103190010p1-7103190010p7
- Publication Year :
- 2017
- Publisher :
- AOTA Press, 2017.
-
Abstract
- This study explored differences in perspectives on quality of life (QOL) between people affected by amyotrophic lateral sclerosis (ALS) and their caregivers. QOL is often thought of as related to physical limitations, without consideration of other factors (e.g., cognitive, emotional) that may be stronger predictors of QOL in people with long-term degenerative diseases. Because QOL is complex and influenced by multiple factors, people with ALS and their caregivers may have different perspectives on what constitutes QOL. This study investigated potential discrepancies in QOL perspectives between people with ALS and their caregivers. Thirty dyads from the Augusta University Health ALS Clinic completed a measure of QOL, and we compared the results and identified patterns. The most prominent finding was that members of the dyads misunderstood the mental experiences of one another.
- Subjects :
- Adult
Male
Gerontology
Activities of daily living
MEDLINE
03 medical and health sciences
0302 clinical medicine
Occupational Therapy
Quality of life
Activities of Daily Living
Humans
Medicine
Amyotrophic lateral sclerosis
Aged
Aged, 80 and over
business.industry
030503 health policy & services
Amyotrophic Lateral Sclerosis
Cognition
Middle Aged
medicine.disease
Mental health
humanities
Physical limitations
Mental Health
Multiple factors
Caregivers
Quality of Life
Female
0305 other medical science
business
030217 neurology & neurosurgery
Subjects
Details
- ISSN :
- 19437676 and 02729490
- Volume :
- 71
- Database :
- OpenAIRE
- Journal :
- The American Journal of Occupational Therapy
- Accession number :
- edsair.doi.dedup.....097dd18e32d99400e66f0ad5957435f4