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Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty
- Source :
- J Urol
- Publication Year :
- 2017
-
Abstract
- PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret. RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified. CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor’s level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
- Subjects :
- Adult
Male
Parents
medicine.medical_specialty
Urologic Surgical Procedures, Male
Urology
Decision Making
Adjustment disorders
Disorders of Sex Development
030232 urology & nephrology
Specialty
Emotional Adjustment
Article
03 medical and health sciences
Gynecologic Surgical Procedures
Postoperative Complications
0302 clinical medicine
Quality of life
030225 pediatrics
Adaptation, Psychological
medicine
Atypia
Humans
Sex organ
Congenital adrenal hyperplasia
Longitudinal Studies
Postoperative Period
Genitalia
Psychiatry
Child
business.industry
Infant
Regret
Middle Aged
Plastic Surgery Procedures
medicine.disease
Distress
Treatment Outcome
Child, Preschool
Quality of Life
Female
business
Stress, Psychological
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- J Urol
- Accession number :
- edsair.doi.dedup.....038fbe8e19525ba501e16f5c606fac56