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'JovenFuerte': Program for Young Women with Breast Cancer in Mexico - Initial Results

Authors :
Servando Cardona-Huerta
Yoatzin Vega
Regina Barragan-Carrillo
Cynthia Villarreal-Garza
Alejandro Mohar-Betancourt
Alan Fonseca
Alejandra Platas
Andrea Castro-Sanchez
Dione Aguilar
Melina Miaja
Juan Matus-Santoso
B Alejandra Martinez-Cannon
Enrique Bargallo-Rocha
Omar Peña-Curiel
Source :
Revista de investigacion clinica; organo del Hospital de Enfermedades de la Nutricion. 69(4)
Publication Year :
2017

Abstract

Despite the high rates of breast cancer among young Mexican women, their special needs and concerns have not been systematically addressed. To fulfill these unsatisfied demands, we have developed “Joven & Fuerte: Program for Young Women with Breast Cancer in Mexico,” the first program dedicated to the care of young breast cancer patients in Latin America, which is taking place at the National Cancer Institute of Mexico and the two medical facilities of the Instituto Tecnologico y de Estudios Superiores de Monterrey. The program was created to optimize the complex clinical and psychosocial care of these patients, enhance education regarding their special needs, and promote targeted research, as well as to replicate this program model in other healthcare centers across Mexico and Latin America. From November 2013 to February 2017, the implementation of the “Joven & Fuerte” program has delivered specialized care to 265 patients, through the systematic identification of their particular needs and the provision of fertility, genetic, and psychological supportive services. Patients and families have engaged in pedagogic activities and workshops and have created a motivated and empowered community. The program developed and adapted the first educational resources in Spanish dedicated for young Mexican patients, as well as material for healthcare providers. As for research, a prospective cohort of young breast cancer patients was established to characterize clinicopathological features and psychosocial effects at baseline and during follow-up, as a guide for the development of specific cultural interventions addressing this vulnerable group. Eventually, it is intended that the program’s organization and structure can reach national and international interactions and serve as a platform for other countries.

Details

ISSN :
00348376
Volume :
69
Issue :
4
Database :
OpenAIRE
Journal :
Revista de investigacion clinica; organo del Hospital de Enfermedades de la Nutricion
Accession number :
edsair.doi.dedup.....0102604688c6a6fd46731548fd9f2f24