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A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
- Source :
- Journal of Parkinson's Disease
- Publication Year :
- 2021
- Publisher :
- IOS Press, 2021.
-
Abstract
- The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities.
- Subjects :
- Parkinson’s research
research Inclusivity
Cohort Studies
minority health
03 medical and health sciences
Cellular and Molecular Neuroscience
The Michael J. Fox Foundation
0302 clinical medicine
Humans
research diversity
030212 general & internal medicine
Michael J. Fox Foundation – Position Paper
research participation
health equity
business.industry
Equity (finance)
Parkinson Disease
Public relations
Health equity
Call to action
clinical research
Action (philosophy)
General partnership
Workforce
Parkinson’s disease
Neurology (clinical)
Health disparities
business
Psychology
Inclusion (education)
030217 neurology & neurosurgery
Diversity (business)
Subjects
Details
- ISSN :
- 1877718X and 18777171
- Volume :
- 11
- Database :
- OpenAIRE
- Journal :
- Journal of Parkinson's Disease
- Accession number :
- edsair.doi.dedup.....00e7b7e3b3f4c875399c080f496fd62b