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Citizen Science on Your Smartphone: An ELSI Research Agenda
- Source :
- Journal of Law, Medicine & Ethics. 43:897-903
- Publication Year :
- 2015
- Publisher :
- Cambridge University Press (CUP), 2015.
-
Abstract
- Beginning in the 20th century, scientific research came to be dominated by a growing class of credentialed, professional scientists who overwhelmingly displaced the learned amateurs of an earlier time. By the end of the century, however, the exclusive realm of professional scientists conducting research was joined, to a degree, by “citizen scientists.” The term originally encompassed non-professionals assisting professional scientists by contributing observations and measurements to ongoing research enterprises. These collaborations were especially common in the environmental sciences, where citizen scientists participated in counting wildlife and measuring environmental conditions. Later, patient groups began to play a more active role in supporting clinical trials and collecting health records from affected individuals.
- Subjects :
- Research ethics
Telemedicine
business.industry
Health Policy
MEDLINE
General Medicine
Public relations
Data sharing
03 medical and health sciences
Issues, ethics and legal aspects
0302 clinical medicine
Informed consent
030225 pediatrics
Political science
Citizen science
Confidentiality
030212 general & internal medicine
business
mHealth
Subjects
Details
- ISSN :
- 1748720X and 10731105
- Volume :
- 43
- Database :
- OpenAIRE
- Journal :
- Journal of Law, Medicine & Ethics
- Accession number :
- edsair.doi...........ceb7d598299c1b5276a238f3f5c25a06
- Full Text :
- https://doi.org/10.1111/jlme.12327