What Makes a Good Health Related Research Data Repository? Findings from a Scoping Review

Introduction There is a strong need for having a focal point such as a data repository platform to ensure that evidence produced in local context can be collected, managed, protected and disseminated to relevant parties in timely manner. In establishing such platform, understanding the best practices and major characteristics of established data repositories on health-related research data worldwide would be the first crucial step. A scoping review was thus performed with the objective of mapping the characteristics of online-based health-related research data repositories that are being practised globally. Methodology A three phase processes was performed which include; identifying relevant articles from major online databases, namely Pubmed, CINAHL, Web of Science and Google Scholar; charting the data, and; collating and summarising the data from the articles collected. Results A total of 46 final articles were identified and analysed. Majority of the articles discussed on platforms which are based in the United States and Canada (n=26), combination of more than one country (n=9), Europe (n=8), Africa (n=2), and Asia (n=1). Three major themes emerged that describe the characteristics of these data repositories, namely; Data deposit and archive; Data retrieval and access; Data policy and governance. Discussion/Conclusion The scoping review has revealed the major characteristics of established health-related research data repositories that are being practised globally. It is thus imperative to adopt these characteristics in local data repository platforms to enhance the function of these platforms especially for organisations that produce and manage local research products such as the National Institutes of Health (NIH) Malaysia. [Disclaimer: Abstract text might vary slightly from what is displayed in the e-poster]
This poster was submitted to the 14th National Conference for Clinical Research (NCCR) in August 18-20, 2021. https://nccrconference.com.my/