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Experience of an information aid for newly diagnosed multiple sclerosis patients: a qualitative study on the SIMS-Trial
- Source :
- Health Expectations. 17:36-48
- Publication Year :
- 2011
- Publisher :
- Wiley, 2011.
-
Abstract
- Background The SIMS-Trial (ISRCTN81072971) proved the effectiveness, in terms of patients knowledge and care satisfaction, of an add-on information aid (personal interview with a physician using a navigable CD and take-home booklet) in 120 newly diagnosed patients with multiple sclerosis (MS) from five Italian centres. Objective To scrutinize the experience of SIMS-Trial participants in order to gain better understanding of the effectiveness of the information aid and its components. Design We performed (i) nine individual semi-structured interviews with a purposeful sample of SIMS-Trial patients who received the information aid, (ii) focus group meeting (FGM) with the physicians who conducted the personal interview, and (iii) FGM with patients caring neurologists.
Details
- ISSN :
- 13696513
- Volume :
- 17
- Database :
- OpenAIRE
- Journal :
- Health Expectations
- Accession number :
- edsair.doi...........5249ff68a0f7fe9b83ab6b752977d619