What are the factors associated with the quality of life for parents of children affected by neurodevelopmental disorders? Usage of the quality of life survey approved PAR-DD-QOL in general medicine

Aim: This project aims to evaluate the quality of life for parents of children affected by neurodevelopmental disorders using the survey approved by Par-DD-Qol.Methods: It is a quantitative, descriptive, and analytical study directed at a population of 130 parents of children affected by neurodevelopmental disorders in the Ile-de-France region between January and May 2019.Results: The main factors associated with better scores in quality of life are the support of the general practitioner as well as being in a relationship. The parents’ level of education, autism spectrum disorders, and delays in the diagnosis are associated with worst results when it comes to the quality of life.Conclusion: Knowing the factors associated with the quality of life allows to target actions needed to support the parents as their well-being is crucial for better general care of the child.