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Priority topics for child and family health research in community-based paediatric health care according to caregivers and health care professionals

Authors :
Andrea Eaton
Michele P Dyson
Rebecca Gokiert
Hasu Rajani
Marcus O’Neill
Tehseen Ladha
Mona Zhang
Catherine S Birken
Jonathon L Maguire
Geoff D C Ball
Source :
Paediatrics & Child Health. 28:158-165
Publication Year :
2023
Publisher :
Oxford University Press (OUP), 2023.

Abstract

Background Patient-oriented research (POR) aligns research with stakeholders’ priorities to improve health services and outcomes. Community-based health care settings offer an opportunity to engage stakeholders to determine the most important research topics to them. Our objectives were to identify unanswered questions that stakeholders had regarding any aspect of child and family health and prioritize their ‘top 10’ questions. Methods We followed the James Lind Alliance (JLA) priority setting methodology in partnership with stakeholders from the Northeast Community Health Centre (NECHC; Edmonton, Canada). We partnered with stakeholders (five caregivers, five health care professionals [HCPs]) to create a steering committee. Stakeholders were surveyed in two rounds (n = 125 per survey) to gather and rank-order unanswered questions regarding child and family health. A final priority setting workshop was held to finalize the ‘top 10’ list. Results Our initial survey generated 1,265 submissions from 100 caregivers and 25 HCPs. Out of scope submissions were removed and similar questions were combined to create a master list of questions (n = 389). Only unanswered questions advanced (n = 108) and were rank-ordered through a second survey by 100 caregivers and 25 HCPs. Stakeholders (n = 12) gathered for the final workshop to discuss and finalize the ‘top 10’ list. Priority questions included a range of topics, including mental health, screen time, COVID-19, and behaviour. Conclusion Our stakeholders prioritized diverse questions within our ‘top 10’ list; questions regarding mental health were the most common. Future patient-oriented research at this site will be guided by priorities that were most important to caregivers and HCPs.

Details

ISSN :
19181485 and 12057088
Volume :
28
Database :
OpenAIRE
Journal :
Paediatrics & Child Health
Accession number :
edsair.doi...........0d37a6bfc5f7f96cdd63b30b8895b149
Full Text :
https://doi.org/10.1093/pch/pxac106