Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease (vol 13, 155, 2018)

Authors :: Wood, L
Bassez, G
Bleyenheuft, C
Campbell, C
Cossette, L
Jimenez-Moreno, AC
Dai, Y
Dawkins, H
Diaz-Manera, J
Dogan, C
el Sherif, R
Fossati, B
Graham, C
Hilbert, J
Kastreva, K
Kimura, E
Korngut, L
Kostera-Pruszczyk, A
Lindberg, C
Lindvall, B
Luebbe, E
Lusakowska, A
Mazanec, R
Meola, G
Orlando, L
Takahashi, MP
Peric, S
Puymirat, J
Rakocevic-Stojanovic, V
Rodrigues, M
Roxburgh, R
Schoser, B
Segovia, S
Shatillo, A
Thiele, S
Tournev, I
van Engelen, B
Vohanka, S
Lochmuller, H
Source :: Orphanet Journal of Rare Diseases, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname
Publication Year :: 2019
Publisher :: BMC, 2019.

ISSN :: 17501172
Database :: OpenAIRE
Journal :: Orphanet Journal of Rare Diseases, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname
Accession number :: edsair.RECOLECTA.....ba347b4fc75035aaf6a27ce514980088

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