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Implementation of a Pilot Clinic for Pediatric to Adult Cancer Survivorship Transitions

Authors :
Jin, Alexander Hai
Simon, Pamela J.
Clayton, Alison
Benedict, Catherine
Liedtke, Michaela
Muffly, Lori
Schapira, Lidia
Smith, Stephanie M.
Source :
Journal of Adolescent and Young Adult Oncology; 20240101, Issue: Preprints
Publication Year :
2024

Abstract

Childhood cancer survivors are recommended to have lifelong survivorship care, yet many become disengaged during pediatric to adult care transitions. We implemented a pilot clinic for adult survivors of pediatric or adolescent and young adult (AYA) leukemia transitioning to adult-focused survivorship care. The clinic featured AYA-specific care, bidirectional communication with primary care, and a quality improvement (QI) cycle. During the 1-year QI period, 27 patients were seen and 21 completed postvisit interviews. The clinic was positively received by patients and primary care providers, showed promise for improving self-management and care coordination, and highlighted the need for novel approaches to connect survivors with primary care.

Details

Language :
English
ISSN :
21565333 and 2156535x
Issue :
Preprints
Database :
Supplemental Index
Journal :
Journal of Adolescent and Young Adult Oncology
Publication Type :
Periodical
Accession number :
ejs63806241
Full Text :
https://doi.org/10.1089/jayao.2023.0041