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“Extremely slow and capricious”: A qualitative exploration of genetic researcher priorities in selecting shared data resources

Authors :
Trinidad, M. Grace
Ryan, Kerry A.
Krenz, Chris D.
Roberts, J. Scott
McGuire, Amy L.
De Vries, Raymond
Zikmund-Fisher, Brian J.
Kardia, Sharon
Marsh, Erica
Forman, Jane
Kent, Madison
Wilborn, David
Spector-Bagdady, Kayte
Source :
Genetics in Medicine; January 2023, Vol. 25 Issue: 1 p115-124, 10p
Publication Year :
2023

Abstract

Genetic researchers’ selection of a database can have scientific, regulatory, and ethical implications. It is important to understand what is driving database selection such that database stewards can be responsive to user needs while balancing the interests of communities in equitably benefiting from advances.

Details

Language :
English
ISSN :
10983600 and 15300366
Volume :
25
Issue :
1
Database :
Supplemental Index
Journal :
Genetics in Medicine
Publication Type :
Periodical
Accession number :
ejs61515904
Full Text :
https://doi.org/10.1016/j.gim.2022.09.003