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Chronic Rhinosinusitis Outcome Registry (CHRINOSOR): Establishment of an International Outcome Registry Driven by mHealth Technology

Authors :
Seys, Sven F.
Hellings, Peter W.
Alobid, Isam
Backer, Vibeke
Bequignon, Emilie
von Buchwald, Christian
Cavaliere, Carlo
Coste, André
Deneyer, Lauren
Diamant, Zuzana
Eckl-Dorna, Julia
Fokkens, Wytske J.
Gane, Simon
Gevaert, Philippe
Holbaek-Haase, Christiane
Holzmeister, Clemens
Hopkins, Claire
Hox, Valérie
Huart, Caroline
Jankowski, Roger
Jorissen, Mark
Kjeldsen, Anette
Knipps, Lisa
Lange, Bibi
van der Lans, Rik
Laulajainen-Hongisto, Anu
Larsen, Kenneth
Liu, David T.
Lund, Valerie
Mariën, Gert
Masieri, Simonetta
Mortuaire, Geoffrey
Mullol, Joaquim
Reitsma, Sietze
Rombaux, Philippe
Schneider, Sven
Steinsvik, Andreas
Tomazic, Peter-Valentin
Toppila-Salmi, Sanna K.
Van Gerven, Laura
Van Zele, Thibaut
Virkkula, Paula
Wagenmann, Martin
Bachert, Claus
Source :
The Journal of Allergy and Clinical Immunology: In Practice; 20220101, Issue: Preprints
Publication Year :
2022

Abstract

Real-world evidence (RWE) is a valuable instrument to better understand the patient journey and effectiveness of therapies. RWE on the prevalence of uncontrolled chronic rhinosinusitis (CRS) and CRS natural course of disease across Europe is scarce. In addition, there is limited RWE that enables comparison of the effectiveness of marketed therapies including topical or systemic corticosteroids, sinus surgery, or biologics.

Details

Language :
English
ISSN :
22132198
Issue :
Preprints
Database :
Supplemental Index
Journal :
The Journal of Allergy and Clinical Immunology: In Practice
Publication Type :
Periodical
Accession number :
ejs61441619
Full Text :
https://doi.org/10.1016/j.jaip.2022.09.043