Disease and Treatment Knowledge Deficits in Patients with Mild and Moderate Hemophilia May Impact Transition Readiness

Objectives:Demonstration of age appropriate disease and treatment knowledge is important in preparing adolescents with hemophilia for transition to adult care. Our pediatric hemophilia treatment center (HTC) aimed to use quality improvement (QI) methodology to develop a tool to assess and document transition skills in order to foster medical independence in a complex healthcare environment.