HM-PRO: A Novel Patient-Reported Outcome Measure in Hematological Malignancy for Use in Clinical Practice

Background:Patient with hematological malignancies (HM) often experience worsening of quality of life (QoL) due to both the disease and its treatments. Impaired QoL may have negative impact on treatment outcomes leading to change in treatment decision-making. However, this has not been captured in a systematic manner in routine clinical practice and there is no specific instrument for such purpose. Thus, there is the need of a new patient-reported outcome (PRO) measure. The aims of this study were to identify issues important to patients with HM and to develop a new PRO measure for use in daily clinical practice.