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CureGN Study Rationale, Design, and Methods: Establishing a Large Prospective Observational Study of Glomerular Disease

Authors :
Mariani, Laura H.
Bomback, Andrew S.
Canetta, Pietro A.
Flessner, Michael F.
Helmuth, Margaret
Hladunewich, Michelle A.
Hogan, Jonathan J.
Kiryluk, Krzysztof
Nachman, Patrick H.
Nast, Cynthia C.
Rheault, Michelle N.
Rizk, Dana V.
Trachtman, Howard
Wenderfer, Scott E.
Bowers, Corinna
Hill-Callahan, Peg
Marasa, Maddalena
Poulton, Caroline J.
Revell, Adelaide
Vento, Suzanne
Barisoni, Laura
Cattran, Dan
D’Agati, Vivette
Jennette, J. Charles
Klein, Jon B.
Laurin, Louis-Philippe
Twombley, Katherine
Falk, Ronald J.
Gharavi, Ali G.
Gillespie, Brenda W.
Gipson, Debbie S.
Greenbaum, Larry A.
Holzman, Lawrence B.
Kretzler, Matthias
Robinson, Bruce
Smoyer, William E.
Guay-Woodford, Lisa M.
Ahn, Wooin
Appel, Gerald B.
Babayev, Revekka
Batal, Ibrahim
Bomback, Andrew S.
Brown, Eric
Campenot, Eric S.
Canetta, Pietro
Carlassara, Lucrezia
Chan, Brenda
Chatterjee, Debanjana
D’Agati, Vivette D.
Delbarba, Elisa
Dogra, Samriti
Fernandez, Hilda
Foroncewicz, Bartosz
Gharavi, Ali G.
Ghiggeri, Gian Marco
Hines, William H.
Ali Husain, S.
Jain, Namrata G.
Khairallah, Pascale
Kil, Byum Hee
Kiryluk, Krzysztof
Jeyabalan, Anushya
Lau, Wai L.
Lin, Fangming
Lugani, Francesca
Marasa, Maddalena
Markowitz, Glen
Mohan, Sumit
Mu, Xueru
Mucha, Krzysztof
Nickolas, Thomas L.
Piva, Stacy
Radhakrishnan, Jai
Rao, Maya K.
Regunathan-Shenk, Renu
Sanna-Cherchi, Simone
Santoriello, Dominick
Shirazian, Shayan
Stokes, Michael B.
Yu, Natalie
Valeri, Anthony M.
Zviti, Ronald
Greenbaum, Larry A.
Smoyer, William E.
Al-Uzri, Amira
Ambruzs, Josephine
Ashoor, Isa
Aviles, Diego
Baracco, Rossana
Barcia, John
Bartosh, Sharon
Belsha, Craig
Bowers, Corinna
Braun, Michael C.
Cai, Yi
Chernitskiy, Vladimir
Chishti, Aftab
Claes, Donna
Clark, Kira
Cramer, Carl
Davis, Keefe
Dutcher, Amy
Erkan, Elif
Feig, Daniel
Freundlich, Michael
Gaut, Joseph
Gbadegesin, Rasheed
Hanna, Melisha
Hidalgo, Guillermo
Hooper, David
Hunley, Tracy E.
Jain, Amrish
Kallash, Mahmoud
Kamel, Margo
Khalid, Myda
Klein, Jon B.
Kump, Theresa
Lane, Jerome C.
Liapis, Helen
Mahan, John
Mathews, Nisha
Nester, Carla
Pan, Cynthia
Patterson, Larry
Patel, Hiren
Raad, Alice
Revell, Adelaide
Rheault, Michelle N.
Silva, Cynthia
Sreedharan, Rajasree
Srivastava, Tarak
Steinke, Julia
Sumner, Susan
Twombley, Katherine
Wenderfer, Scott E.
Vasylyeva, Tetyana L.
Wang, Chia-shi
Weaver, Donald J.
Wong, Craig S.
Yin, Hong
Achanti, Anand
Almaani, Salem
Ayoub, Isabelle
Budisavljevic, Milos
D'Angelo, Maggie
Derebail, Vimal
Fatima, Huma
Falk, Ronald
Fogo, Agnes
Gibson, Keisha
Glenn, Dorey
Hogan, Susan
Jain, Koyal
Jennette, J. Charles
Julian, Bruce
Kidd, Jason
Laurin, Louis-Philippe
Massey, H. Davis
Mottl, Amy
Murphy, Shannon
Nadasdy, Tibor
Novak, Jan
Parikh, Samir
Poulton, Caroline
Powell, Thomas Brian
Reeve, Bryce
Renfrow, Matthew
Reynolds, Monica
Rizk, Dana
Rovin, Brad
Royal, Virginie
Saha, Manish
Sanghani, Neil
Self, Sally
Adler, Sharon
Alachkar, Nada
Alpers, Charles
Matar, Raed Bou
Avila-Casado, Carmen
Bagnasco, Serena
Brede, Emily
Brown, Elizabeth
Cattran, Daniel
Choi, Michael
Contreras, Gabriel
Dell, Katherine M.
Dewalt, Darren
Denburg, Michelle
Dukkipati, Ram
Fervenza, Fernando C.
Fornoni, Alessia
Gadegbeku, Crystal
Gipson, Patrick
Gonzalez-Zea, Anny
Hasely, Leah
Hendren, Elizabeth
Hingorani, Sangeeta
Hladunewich, Michelle
Hogan, Jonathan
Holzman, Lawrence B.
Hou, Jean
Jefferson, J. Ashley
Jhaveri, Kenar
Johnstone, Duncan B.
Kaskel, Frederick
Kogan, Amy
Kopp, Jeffrey
Lafayette, Richard
Lemley, Kevin V.
Malaga-Dieguez, Laura
Meyers, Kevin
Neu, Alicia
O'Shaughnessy, Michelle Marie
O’Toole, John F.
Oliverio, Andrea
Palmer, Matthew
Parekh, Rulan
Pitter, Renee
Reich, Heather
Reidy, Kimberly
Rondon, Helbert
Sambandam, Kamalanathan K.
Sampson, Matthew
Sedor, John R.
Selewski, David T.
Sethna, Christine B.
Schelling, Jeffrey
Sperati, John C.
Swiatecka-Urban, Agnes
Trachtman, Howard
Tuttle, Katherine R.
Waldman, Meryl
Weisstuch, Joseph
Wiggins, Roger
Williams, David
Winkler, Cheryl
Vento, Suzanne
Young, Eric
Zhdanova, Olga
Barisoni, Laura
Beil, Charlotte
Eikstadt, Richard
Gillespie, Brenda
Gipson, Debbie S.
Graff, John
Hewitt, Stephen
Hill-Callahan, Peg
Helmuth, Margaret
Herreshoff, Emily
Kretzler, Matthias
Lienczewski, Chrysta
Mansfield, Sarah
Mariani, Laura
McCullough, Keith
Moore, Nicholas
Nast, Cynthia C.
Robinson, Bruce M.
Sexton, Melissa
Troost, Jonathan
Wladkowski, Matthew
Zee, Jarcy
Zinsser, Dawn
Guay-Woodford, Lisa M.
Source :
American Journal of Kidney Diseases; February 2019, Vol. 73 Issue: 2 p218-229, 12p
Publication Year :
2019

Abstract

Glomerular diseases, including minimal change disease, focal segmental glomerulosclerosis, membranous nephropathy, and immunoglobulin A (IgA) nephropathy, share clinical presentations, yet result from multiple biological mechanisms. Challenges to identifying underlying mechanisms, biomarkers, and new therapies include the rarity of each diagnosis and slow progression, often requiring decades to measure the effectiveness of interventions to prevent end-stage kidney disease (ESKD) or death.

Details

Language :
English
ISSN :
02726386 and 15236838
Volume :
73
Issue :
2
Database :
Supplemental Index
Journal :
American Journal of Kidney Diseases
Publication Type :
Periodical
Accession number :
ejs47001227
Full Text :
https://doi.org/10.1053/j.ajkd.2018.07.020