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Toward a person‐centered ethics framework for autonomy in spinal cord injury research and rehabilitation.

Authors :
Nuechterlein, Anna
Olmos Pérez, Alexandra
Rossi, Fabio
Swift, Jody
Townson, Andrea
Illes, Judy
Source :
PM & R: Journal of Injury, Function & Rehabilitation; Oct2024, Vol. 16 Issue 10, p1154-1161, 8p
Publication Year :
2024

Abstract

In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework‐absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person‐centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
19341482
Volume :
16
Issue :
10
Database :
Supplemental Index
Journal :
PM & R: Journal of Injury, Function & Rehabilitation
Publication Type :
Academic Journal
Accession number :
180170939
Full Text :
https://doi.org/10.1002/pmrj.13146