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A descriptive exploration of the experiences of patients with significant functional impairment following a recent diagnosis of metastatic spinal cord compression.
- Source :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.); Mar2014, Vol. 70 Issue 3, p564-574, 11p
- Publication Year :
- 2014
-
Abstract
- Aim To explore the experiences, concerns and priorities of patients newly diagnosed with advanced malignant spinal cord compression and had significant problems with mobility at presentation. Background The consequences of malignant spinal cord compression can be devastating. Patients and their families are under pressure to adapt quickly to the significant functional impairment that occurs while coping with a diagnosis of advanced cancer. Much of the literature has focused on diagnosis and treatment and little is known about patients' experiences, priorities and concerns. Design A descriptive qualitative methodology was adopted using semi-structured interviews and Framework Analysis techniques. Method A semi-structured interview schedule was developed to explore patient's descriptions of their experiences leading up to diagnosis and during their admission to the cancer centre along with their thoughts and feelings about their future with malignant spinal cord compression. The interviews took place after completion of radiotherapy before discharge home. Interviews were carried out between April 2009-March 2010. Findings Ten participants were interviewed. A dual narrative was identified in which participants talked about their concerns and emphasized their ability to cope and maintain a positive outlook. Patients' concerns and priorities were identified. Maintaining hope emerged as an important element of coping. Uncertainty was a source of hope. Conclusion The study provides insights into the experience of malignant spinal cord compression from symptom occurrence to diagnosis and beyond. The findings highlight the importance of early discharge planning and family involvement in meeting patients' priorities for care. [ABSTRACT FROM AUTHOR]
- Subjects :
- ADAPTABILITY (Personality)
PSYCHOLOGICAL adaptation
ATTITUDE (Psychology)
CANCER patients
CANCER patient medical care
CANCER treatment
CONCEPTUAL structures
DISEASES
FAMILIES
HOPE
INTERVIEWING
LIFE skills
RESEARCH methodology
METASTASIS
PALLIATIVE treatment
PATIENT education
RESEARCH
RESEARCH evaluation
RESEARCH funding
HEALTH self-care
QUALITATIVE research
SPINAL cord compression
DATA analysis
ACTIVITIES of daily living
SOCIAL support
SPECIALTY hospitals
THEMATIC analysis
BODY movement
DISCHARGE planning
SEVERITY of illness index
PATIENTS' attitudes
SYMPTOMS
PROGNOSIS
Subjects
Details
- Language :
- English
- ISSN :
- 03092402
- Volume :
- 70
- Issue :
- 3
- Database :
- Complementary Index
- Journal :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.)
- Publication Type :
- Academic Journal
- Accession number :
- 93894418
- Full Text :
- https://doi.org/10.1111/jan.12215