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The family experience following bone marrow or blood cell transplantation.
- Source :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.); Oct2013, Vol. 69 Issue 10, p2274-2284, 11p, 3 Diagrams, 2 Charts
- Publication Year :
- 2013
-
Abstract
- Aim To explore how families with children at home managed 4-12 months after an adult family member was discharged from the hospital to home following bone marrow or blood cell transplantation. Background Studies of these families have been limited in number. The Family Management Style Framework offers a conceptual framework relevant to families with children who have an adult member who has undergone a bone marrow or blood cell transplant. Design This was a descriptive, qualitative, one-point-in-time study. Method Content analysis in relation to the three conceptual components of the Family Management Style Framework was employed; inductive thematic analysis determined the emergent conceptual dimensions present in the data. The sample was composed of 29 participants: 15 transplant recipients and 14 significant others who met the study criteria in 2008 and 2009. Each patient and his or her significant other were interviewed; the audio-recorded interviews were analysed after transcription. Findings The three conceptual components of the Family Management Style Framework: (1) definition of the situation; (2) management behaviours; and (3) perceived consequences , were validated as relevant for this sample across all participants. New conceptual dimensions were also present, inclusive of recovery view, support base, financial picture, management domains, perceived consequences to the whole family, and perceived consequences to the dyad relationships. Conclusion There are several overarching findings in this study, notably that recovery at home is a family experience. Implications for nursing practice include the need for effective transitional care for the patient and family. [ABSTRACT FROM AUTHOR]
- Subjects :
- ADAPTABILITY (Personality)
PSYCHOLOGICAL adaptation
ATTITUDE (Psychology)
BONE marrow transplantation
CANCER patients
CAREGIVERS
PSYCHOLOGY of caregivers
CELL transplantation
CONCEPTUAL structures
CONTENT analysis
CONVALESCENCE
DISEASES
EMPLOYMENT
FAMILIES
HEALTH attitudes
HEALTH status indicators
HOME nursing
INCOME
INTERVIEWING
MARITAL status
PATIENT-family relations
NURSING practice
PARENT-child relationships
RESEARCH evaluation
RESEARCH funding
HEALTH self-care
SOCIAL networks
SOCIAL role
PSYCHOLOGICAL stress
QUALITATIVE research
JUDGMENT sampling
ACTIVITIES of daily living
FAMILY relations
SIGNIFICANT others
SOCIAL support
WELL-being
EDUCATIONAL attainment
THEMATIC analysis
BURDEN of care
DATA analysis software
FAMILY attitudes
DESCRIPTIVE statistics
SOCIAL role change
Subjects
Details
- Language :
- English
- ISSN :
- 03092402
- Volume :
- 69
- Issue :
- 10
- Database :
- Complementary Index
- Journal :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.)
- Publication Type :
- Academic Journal
- Accession number :
- 90210873
- Full Text :
- https://doi.org/10.1111/jan.12111