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'It's like a problem that doesn't exist': The emotional well-being of mothers caring for a child with brain injury.
- Source :
- Brain Injury; Aug2013, Vol. 27 Issue 9, p1063-1072, 10p
- Publication Year :
- 2013
-
Abstract
- Background: Although research has shown that significant burden and adverse psychological impact are associated with caring for a child with brain injury, limited knowledge exists concerning the qualitative experience and impact of this burden. Objective: To provide an account of the experiences of mothers who care for a childhood survivor of brain injury. Research design: Postal survey. Methods and procedures: A self-report questionnaire was sent to a consecutive sample of mothers ( n = 86) of children (aged 2-28) with acquired brain injury, registered with a UK children's brain injury charity. Five essay style questions enabled mothers to reflect on and describe at length their caring experiences, with particular emphasis placed on the perceived impact on emotional well-being. Main outcomes and results: Thematic analysis identified five key themes: Perpetually Anxious, The Guilty Carer, The Labour of Caring, A Self-Conscious Apologist and Perpetually Grieving. Collectively, these themes highlight two core processes shaping mothers' caring experiences and concomitant mental well-being. First, the collective and enduring nature of caregiver burden over time. Second, the crucial role played by socio-cultural values in perpetuating caregiver burden. Conclusions: Societal norms, particularly those relating to the nature and outcome of brain injury and motherhood, serve to marginalize mothers and increase feelings of isolation. Findings suggest the value of peer support programmes as an effective means of providing appropriate social support. [ABSTRACT FROM AUTHOR]
- Subjects :
- COMPLICATIONS of brain injuries
PSYCHOLOGICAL adaptation
ANXIETY
BRAIN injuries
CAREGIVERS
FAMILIES
GRIEF
GUILT (Psychology)
HEALTH services accessibility
HOME nursing
INTERPERSONAL relations
MEDICAL needs assessment
PSYCHOLOGY of mothers
QUESTIONNAIRES
SELF-evaluation
SOCIAL isolation
SOCIAL participation
SURVEYS
QUALITATIVE research
SOCIAL support
WELL-being
THEMATIC analysis
BEHAVIOR disorders
BURDEN of care
SEVERITY of illness index
Subjects
Details
- Language :
- English
- ISSN :
- 02699052
- Volume :
- 27
- Issue :
- 9
- Database :
- Complementary Index
- Journal :
- Brain Injury
- Publication Type :
- Academic Journal
- Accession number :
- 88935045
- Full Text :
- https://doi.org/10.3109/02699052.2013.794962