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Quality of life and anticipatory grieving among parents living with a child with cerebral palsy.
- Source :
- International Journal of Nursing Practice (John Wiley & Sons, Inc.); Jun2013, Vol. 19 Issue 3, p288-294, 7p, 4 Charts
- Publication Year :
- 2013
-
Abstract
- The purpose of this study was to describe the quality of life and anticipatory grieving among Jordanian parents living with a child with cerebral palsy. A cross-sectional, descriptive, correlational design was used with 204 Jordanian parents. Both mothers and fathers were recruited from health-care centres that provided comprehensive care for children with cerebral palsy in Jordan and from schools for special education. Structured interviews were conducted using the Marwit and Meuser Caregiver Grief Inventory Cerebral Palsy and Quality of Life Index. The majority of the parents reported that providing care for a child with cerebral palsy is requiring more emotional energy and determination than ever expected. There was a significant negative correlation between total anticipatory grief score and total quality of life score and all subscales. This indicates that parents with high level of intensity of anticipatory grief had lower quality of life. No statistically significant differences were found in anticipatory grief and quality of life responses between mothers and fathers. The outcomes of this study have important implications for encouraging family-centred care and inform policy to improve the lives of children with cerebral palsy and their parents. [ABSTRACT FROM AUTHOR]
- Subjects :
- QUALITY of life
CEREBRAL palsy
STATISTICAL correlation
GRIEF
INTERVIEWING
RESEARCH methodology
PSYCHOLOGY of parents
PROBABILITY theory
RESEARCH funding
STATISTICAL sampling
STATISTICAL hypothesis testing
STATISTICS
T-test (Statistics)
DATA analysis
CROSS-sectional method
DATA analysis software
DESCRIPTIVE statistics
CHILDREN
PSYCHOLOGY
Subjects
Details
- Language :
- English
- ISSN :
- 13227114
- Volume :
- 19
- Issue :
- 3
- Database :
- Complementary Index
- Journal :
- International Journal of Nursing Practice (John Wiley & Sons, Inc.)
- Publication Type :
- Academic Journal
- Accession number :
- 87947087
- Full Text :
- https://doi.org/10.1111/ijn.12075